Lenka’s Story of Hope – Lenka i Dobra Spółka
Thousands and thousands of miles away in Poland, a beautiful, sweet girl named Lenka suffers…
Ian’s Story and Mission for a Cure
Little Ian was just recently diagnosed this year with Type 1/infantile GM1. Ian is a…
In Loving Memory, Paxton’s Smiles and Brave Fight
Paxton, a first and only child, was born a seemingly healthy baby boy on Feb….
In Loving Memory of Zac Milo Horspool
Born: Sat., Oct. 13, 2012 Died: Sat., Apr. 18, 2015 A precious angel returned to live with…
Frieda’s Story
From Frieda’s Father Hello, My four year old daughter “Frieda” is diagnosed in GM1. We…
Elena’s Story
From Elena’s Mother Elena was born healthy on 2/7/02. A very much cherished daughter after…