Frieda’s Story – An Update
How is Frieda doing right now with her symptoms, the progression of the disease, and…
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Batul’s Story
Batul’s Story Batul passed away from infantile GM1 (Type 1) on March 23, 2026. Below,…
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Florence’s Story (Update)
Florence’s Story: An Update Back in 2019, we shared the story of Florence, who was…
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Leonor’s Story (Update)
Leonor’s Story: An Update Back in 2019, we shared the story of Leonor, who was…
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Reece’s Story
Reece’s Story, By His Mother A GM1 Type 2 Story(Published April 1, 2026) “Reece, we…
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Happy 18th Birthday, Sweet Iris
Happy 18th Birthday, Sweet Iris An update on Sweet Iris as she heads into adulthood,…
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Daxton’s Story
Daxton’s Story, By His Mother A GM1 Infantile (Type 1) Story(Published Feb. 20, 2026) “GM1…
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Nate’s Story
Nate’s Story, By His Mother A GM1 Late-infantile, Type 2A Story(Dec. 26, 2025) “I didn’t…
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Kinley and Kennedy’s Story
Kinley and Kennedy’s story, by their father “The girls recently hit their 5-year post Gene…