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News

May 2025 Cure GM1 Catalyst

May 6, 2025May 6, 2025

Don’t miss what is happening in our community and the broader rare disease community! There…

Read More May 2025 Cure GM1 CatalystContinue

Cure GM1 April 2025 Catalyst

April 8, 2025April 8, 2025

CURE GM1 CATALYST Don’t miss all that is happening in our community and the broader…

Read More Cure GM1 April 2025 CatalystContinue

Cure GM1 March 2025 Catalyst

February 26, 2025March 3, 2025

CURE GM1 CATALYST Don’t miss all that is happening in our community and the broader…

Read More Cure GM1 March 2025 CatalystContinue

Cure GM1 February 2025 Catalyst

February 3, 2025February 7, 2025

Cure GM1 Catalyst This month is all about love, awareness, and action as we celebrate…

Read More Cure GM1 February 2025 CatalystContinue

Cure GM1 Invests $400,000 to Advance Development of Enzyme Replacement Therapy

January 26, 2025January 27, 2025

Cure GM1 is dedicated to investing in research, seeding new projects, and to the development…

Read More Cure GM1 Invests $400,000 to Advance Development of Enzyme Replacement TherapyContinue

Cure GM1 January 2025 Catalyst

January 7, 2025January 7, 2025

Cure GM1 Catalyst January News Thank you for an amazing year in 2024!The impact of…

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Cure GM1 December 2024 Catalyst

December 5, 2024January 7, 2025

The Cure GM1 Catalyst Newsletter Discover how Cure GM1 is making an impact. We are…

Read More Cure GM1 December 2024 CatalystContinue

Cure GM1 November 2024 Catalyst

November 3, 2024November 4, 2024

Presentation on Patient Preference Research includes Cure GM1 at MDIC Patient Summit Advocacy Christine recently…

Read More Cure GM1 November 2024 CatalystContinue

Cure GM1 Presents to the FDA for the Inaugural Meeting of the Rare Disease Innovation Hub

October 18, 2024October 23, 2024

This meeting was organized by the FDA and the Reagan Udall Foundation at the White…

Read More Cure GM1 Presents to the FDA for the Inaugural Meeting of the Rare Disease Innovation HubContinue

Cure GM1 October 2024 Catalyst

September 28, 2024October 4, 2024

October News! The Cure GM1 Catalyst Welcome to our latest newsletter, where we celebrate our…

Read More Cure GM1 October 2024 CatalystContinue

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PO Box 6890, Albany
CA 94706, USA
1-510-306-2460

Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
      • Use Our Fundraising Manual
      • Fundraise with Charity Miles App
      • See Our Fundraising Ideas
      • Used Car Donation
      • GoFundMe
      • JustGiving
      • Facebook
    • Participate in Our Events
      • Rare Disease Day
      • GM1 Gangliosidosis Awareness Day
      • Move for GM1
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Message to the Newly Diagnosed
      • Learn about Data Sharing
      • Contact Us / Have questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study