Daxton’s Story
Daxton’s story, by his mother “Daxton was one of a kind, and we miss him…
Fiona’s Story
Fiona’s story, by her father “Parenting, I learned, is about loving my child today.“ How…
Kiaan’s Story
Kiaan’s story, by his mother “I wish people understood that rare doesn’t mean less real“…
Peyton’s Story
Peyton Claire’s story, by her mom “The light she has brought into our lives has…
Carter Michael’s Story
Carter’s story, by his mother “Carter Michael was diagnosed with GM1. He was our precious…
Gael’s Story
Gael’s story, by his mother “Gael was diagnosed with Type 1 infantile GM1 on his…
Milah’s Story
Milah’s story, by her mother “Milah was diagnosed with GM1 Type 1 at 8 months…
Ben’s Story
Ben’s story, by his mother “Ben was diagnosed with juvenile GM1 on December 22, 2023,…
Joaquim and Sofia’s Story
Joaquim and Sofia’s story, by their father “Our current focus is on keeping Joaquim as…
Lucas’s Story
Lucas’s story, by his mother “Because of GM1, Lucas has not been able to grow…