Skip to content
CureGM1
  • About GM1 Gangliosidosis
        • About
          • About GM1
          • Disease Overview PDF
          • Clinical Disease Overview Video
          • The Cause
          • Who Gets GM1
          • Incidence of GM1
          • History of GM1
          • Life Expectancy
          • Subtypes of GM1
        • Treatments and Research
          • Advancements and Research
        • If Your Loved One Has GM1
          • Join a Natural History Study
          • Give Samples to the GM1 Biobank
          • Participate in Data Sharing
          • Contact Us
  • How to Help
        • Take Action
        • By Donating
          • Donate
          • Paypal Giving Fund
          • Crypto
          • Contact Us
        • Read and Share Our Stories
          • Community Stories
          • Watch Family Videos
          • Share Your Story
        • For Researchers
          • Grants Overhead Policy
        • By Fundraising
          • See Our Fundraising Ideas
          • Fundraise for CureGM1
            • Use Our Fundraising Manual
            • GoFundMe
            • JustGiving
            • Facebook
          • Used Car Donation
        • Participate in Our Events
          • GM1 Awareness Day
          • Do It for GM1
          • Rare Disease Day
          • Annual Conference
        • By Shopping
          • GM1 Store
          • RaiseRight
          • Buy Chocolate
          • eBay
        • Engage with Cure GM1
          • Contact Us
          • Subscribe to the Newsletter
          • Join the Cure GM1 Parents Facebook Group
          • Join the Friends of Cure GM1 Facebook Group
        • Subscribe to Our YouTube Channel
  • What We Do
        • About the Foundation
          • Mission Statement
          • Board Members and Staff
          • Scientific and Business Advisors
          • Informational Flyer
        • Newsletters
          • View Newsletters
          • Subscribe to the Newsletter
        • Advancements / Research
          • Enzyme Replacement Therapy Project
        • Guide Families
          • Resources For GM1 Families
          • Learn About Data Sharing
          • Contact Us / Have Questions?
        • Drive Progress and Research
          • FDA Engagement, EL-PFDD
          • Voice of the Patient Report
          • Caregiver Preferences Study
DONATE NOW
CureGM1

Pages

Join the Cure GM1 Mailing List

Read More Join the Cure GM1 Mailing ListContinue

Conference Speakers

Read More Conference SpeakersContinue

Grants

Read More GrantsContinue

Submit Your Story

Read More Submit Your StoryContinue

Contribute Now. Your Help Matters!

Contribute Now. Your Help Matters!

Read More Contribute Now. Your Help Matters!Continue

Fundraisers

Read More FundraisersContinue

Family Videos

Read More Family VideosContinue

Participate in Research and Data Sharing

Read More Participate in Research and Data SharingContinue

What is GM1 Gangliosiosis?

Read More What is GM1 Gangliosiosis?Continue

News

Read More NewsContinue

Page navigation

Previous PagePrevious 1 2 3 4 5 6 Next PageNext

501(c)(3) EIN: #47-3154419

PO Box 6890, Albany
CA 94706, USA
1-510-306-2460

Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

Useful Links

  • Privacy Policy
  • Terms and Conditions
  • Contact Us
  • Subscribe to Newsletter
  • Refund Policy
Your Help Matters

© 2025 CureGM1. Maintained by RRethink.

Facebook Instagram Linkedin TikTok YouTube
  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • See Our Fundraising Ideas
      • Fundraise for CureGM1
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study