Elena was diagnosed at age 23 and is from Russia.  She is the rare of the rare and suffers from adult onset GM1, Type 3 GM1 Gangliosidosis.  Her family’s wish and her wish is to have a healthy life and to recover from this awful degenerative disease.  At this time, there are no clinical trials which are targeting GM1 Type 3.  And there is extremely limited information on GM1 Type 3 overall.  GM1 Type 3 is thought to primarily occur in the Japanese.  Further study is required to better understand the prevalence of GM1 Type 3.