Florence has late infantile GM1. She was diagnosed when she was 2. She has real spirit and a zest for life. She dosnt let anything get in her way.  Her family is  determined to help her all the way and give her the best life possible.  Her family and friends firmly believe in helping all the beautiful children suffering from GM1.

To read more about Florence, see these articles on her family’s efforts to help fundraise to support research and Florence’s medical care.

Race to find cure for Florence; Stalybridge toddler battling life-limiting illness

Family’s fight to stop condition that has taken toddler’s first words from eventually taking her life

£40,000 boost to help find a cure for Florence