Hello, I’m Strahinja, 19 months old from Switzerland. I have two older brothers who are fortunately healthy. 

With my family, I spend the days as normal as possible, even though our lives have not been normal for a long time.

My mom noticed early on that I was different, but it was still a shock for her when the doctors told her my diagnosis. Sometimes I don’t wish I was in so much pain, otherwise I’m happy baby who likes to be on mom’s arms, listen to music, and often just enjoys peace.

Even if it will be too late for me, I hope that soon a healing is possible for all my GM1 brothers and sisters.

All the best, your Strahinja 

Sweet Strahinja passed away on October 31st, 2022.