The GM1 EL-PFDD will go live below on October 14th at 10 am – 3:00 pm ET

Live Polling

Respond to polling questions in real time during the meeting.
Go to and make your voice count!

Phone-in Live

Want to talk to us live during the discussion sessions?
Please call 1 703-844-3231 when prompted.

Submit a Written Comment

Submit a comment below on the topics we will be discussing during the EL-PFDD meeting. Comments should be submitted individually.

1. Of all the symptoms of GM1, which 1-3 symptoms have the most significant impact on you or your loved one’s life?

2. How does GM1 affect you or your loved one on best and on worst days? Describe your best days and your worst days.

3. Are there specific activities that are important that you or your loved one cannot do at all or as fully as you would like because of GM1?

4. How has your loved one’s ability to cope with the symptoms changed over time?

Meeting Agenda