We are honored to share that our very own “Sweet Iris” and the mission of the Cure GM1 Foundation were recently featured in a moving segment on KRON 4 News. As we observe Rare Disease Day, this coverage shines a vital spotlight on the realities of living with GM1 Gangliosidosis and the urgent need for continued research and funding.
Happy 18th Birthday, Sweet Iris An update on Sweet Iris as she heads into adulthood,…
Daxton’s Story, By His Mother A GM1 Infantile (Type 1) Story(Published Feb. 20, 2026) “GM1…
What Is GM1 Gangliosidosis? GM1 Gangliosidosis is a rare, inherited genetic disorder that affects the…
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.
2025 Cure GM1 Impact Report Check out what you helped us accomplish in 2025 All…
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.
Nate’s Story, By His Mother A GM1 Late-infantile, Type 2A Story(Dec. 26, 2025) “I didn’t…
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.