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Home / raj - Page 7

Author: raj

Aiden’s Story

February 28, 2018November 27, 2023

Sweet Boy Aiden Aiden is 5 years old now. Things started off great then at…

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Paola’s Story

February 28, 2018November 27, 2023

Una Bellisima Bambina Paola is a beautiful child born on June 29, 2013. She was…

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Joe’s Story

February 28, 2018November 27, 2023

A special boy that fought to the end Joe was born 4 weeks early by…

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Kate’s Story #AWin4Kate

February 28, 2018November 27, 2023

#AWin4Kate Kate was born May 17, 2011, a healthy and happy baby. We always thought…

Read More Kate’s Story #AWin4KateContinue

Paxton’s Story

February 28, 2018November 27, 2023

A beautiful baby boy born February 16, 2012 Paxton is our first and only child,…

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Evan’s Story

December 14, 2017December 15, 2023

Evan lives in Arizona and is the son of Brad and Marilee Diagnosis – GM1…

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IntraBio Inc

September 20, 2017November 14, 2023

  IntraBio Inc is pleased to announce significant progress in the treatment of rare neurodegenerative…

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BioStrategies, LLC Enzyme Replacement Therapy

September 20, 2017November 14, 2023

Read More BioStrategies, LLC Enzyme Replacement TherapyContinue

Eli’s Story

May 15, 2017November 27, 2023

Eli lives in Arizona and is the son of Brad & Marilee Leishman Diagnosis –…

Read More Eli’s StoryContinue

Autumn’s Story

April 16, 2017November 27, 2023

In Loving Memory of Autumn – A Happy Baby through all of the trials Autumn…

Read More Autumn’s StoryContinue

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
      • Use Our Fundraising Manual
      • Fundraise with Charity Miles App
      • See Our Fundraising Ideas
      • Used Car Donation
      • GoFundMe
      • JustGiving
      • Facebook
    • Participate in Our Events
      • Rare Disease Day
      • GM1 Gangliosidosis Awareness Day
      • Move for GM1
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Message to the Newly Diagnosed
      • Learn about Data Sharing
      • Contact Us / Have questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study

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