Author: Tayara Calina

Eva and Franco’s story, by their mother “We keep fighting for them and enjoying our…

Nella’s story, by her father “Nella is living with GM1 — she’s not defined by…

Aidan’s story, by his grandmother “Don’t give up hope, but cherish each moment.“ How did…

Tiffany’s story by her mother, Ruth “Tiffany has made me a better person. In spite…

Solomija’s story, by her friend “Soli was beautiful, and she was beautiful in her soul.”…

Daxton’s story, by his mother “Daxton was one of a kind, and we miss him…

Fiona’s story, by her father “Parenting, I learned, is about loving my child today.“ How…

Kiaan’s story, by his mother “I wish people understood that rare doesn’t mean less real“…

Peyton Claire’s story, by her mom “The light she has brought into our lives has…

Carter’s story, by his mother “Carter Michael was diagnosed with GM1. He was our precious…