Skip to content
info@curegm1.org | 510-306-2460
  • Subscribe to the Newsletter
  • |
  • Do It For GM1
  • |
  • Join the GM1 Census
Facebook Instagram Linkedin TikTok YouTube
CureGM1
  • About GM1 Gangliosidosis
        • About
          • About GM1
          • Disease Overview PDF
          • Clinical Disease Overview Video
          • The Cause
          • Who Gets GM1
          • Incidence of GM1
          • History of GM1
          • Life Expectancy
          • Subtypes of GM1
        • Treatments and Research
          • Advancements and Research
        • If Your Loved One Has GM1
          • Join a Natural History Study
          • Give Samples to the GM1 Biobank
          • Participate in Data Sharing
          • Contact Us
  • How to Help
        • Take Action
          • Join the GM1 Census
        • By Donating
          • Donate
          • Paypal Giving Fund
          • Crypto
          • Contact Us
        • Read and Share Our Stories
          • Community Stories
          • Watch Family Videos
          • Share Your Story
        • For Researchers
          • Grants Overhead Policy
        • By Fundraising
          • See Our Fundraising Ideas
          • Fundraise for CureGM1
            • Use Our Fundraising Manual
            • GoFundMe
            • JustGiving
            • Facebook
          • Used Car Donation
        • Participate in Our Events
          • GM1 Awareness Day
          • Do It for GM1
          • Rare Disease Day
          • Annual Conference
        • By Shopping
          • GM1 Store
          • RaiseRight
          • Buy Chocolate
          • eBay
        • Engage with Cure GM1
          • Contact Us
          • Subscribe to the Newsletter
          • Join the Cure GM1 Parents Facebook Group
          • Join the Friends of Cure GM1 Facebook Group
        • Subscribe to Our YouTube Channel
  • What We Do
        • About the Foundation
          • Mission Statement
          • Board Members and Staff
          • Scientific and Business Advisors
        • Newsletters
          • View Newsletters
          • Subscribe to the Newsletter
        • Advancements / Research
          • Enzyme Replacement Therapy Project
        • Guide Families
          • Resources For GM1 Families
          • Learn About Data Sharing
          • Contact Us / Have Questions?
        • Drive Progress and Research
          • FDA Engagement, EL-PFDD
          • Voice of the Patient Report
          • Caregiver Preferences Study
        • Informational Flyer
DONATE NOW
CureGM1
Home / Tayara Calina - Page 2

Author: Tayara Calina

Joaquim and Sofia’s Story

October 18, 2024April 22, 2025

Joaquim and Sofia’s story, by their father “Our current focus is on keeping Joaquim as…

Read More Joaquim and Sofia’s StoryContinue

Lucas’s Story

October 3, 2024October 3, 2024

Lucas’s story, by his mother “Because of GM1, Lucas has not been able to grow…

Read More Lucas’s StoryContinue

Aidan’s Story

August 23, 2024February 13, 2025

Aidan’s story, by his mother “This is my son, Aidan, who was diagnosed with GM1…

Read More Aidan’s StoryContinue

Page navigation

Previous PagePrevious 1 2

501(c)(3) EIN: #47-3154419

PO Box 6890, Albany
CA 94706, USA
1-510-306-2460

Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

Useful Links

  • Privacy Policy
  • Terms and Conditions
  • Contact Us
  • Subscribe to Newsletter
  • Refund Policy
Your Help Matters

© 2025 CureGM1. Maintained by RRethink.

Facebook Instagram Linkedin TikTok YouTube
  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
      • Join the GM1 Census
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • See Our Fundraising Ideas
      • Fundraise for CureGM1
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
    • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study