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Home / Blog - Page 3

Blog

Ben’s Story

December 26, 2024December 26, 2024

Ben’s story, by his mother “Ben was diagnosed with juvenile GM1 on December 22, 2023,…

Read More Ben’s StoryContinue

Cure GM1 December 2024 Catalyst

December 5, 2024January 7, 2025

The Cure GM1 Catalyst Newsletter Discover how Cure GM1 is making an impact. We are…

Read More Cure GM1 December 2024 CatalystContinue

Cure GM1 November 2024 Catalyst

November 3, 2024November 4, 2024

Presentation on Patient Preference Research includes Cure GM1 at MDIC Patient Summit Advocacy Christine recently…

Read More Cure GM1 November 2024 CatalystContinue

Joaquim and Sofia’s Story

October 18, 2024April 22, 2025

Joaquim and Sofia’s story, by their father “Our current focus is on keeping Joaquim as…

Read More Joaquim and Sofia’s StoryContinue

Cure GM1 Presents to the FDA for the Inaugural Meeting of the Rare Disease Innovation Hub

October 18, 2024October 23, 2024

This meeting was organized by the FDA and the Reagan Udall Foundation at the White…

Read More Cure GM1 Presents to the FDA for the Inaugural Meeting of the Rare Disease Innovation HubContinue

Lucas’s Story

October 3, 2024October 3, 2024

Lucas’s story, by his mother “Because of GM1, Lucas has not been able to grow…

Read More Lucas’s StoryContinue

Cure GM1 October 2024 Catalyst

September 28, 2024October 4, 2024

October News! The Cure GM1 Catalyst Welcome to our latest newsletter, where we celebrate our…

Read More Cure GM1 October 2024 CatalystContinue

Cure GM1 September 2024 Catalyst

August 31, 2024September 28, 2024

Get Ready for an Action-Packed Month with Cure GM1 The Cure GM1 Catalyst This month…

Read More Cure GM1 September 2024 CatalystContinue

Aidan’s Story

August 23, 2024February 13, 2025

Aidan’s story, by his mother “This is my son, Aidan, who was diagnosed with GM1…

Read More Aidan’s StoryContinue

Cure GM1 August 2024 Catalyst

August 6, 2024September 4, 2024

Goodbye July & Hello August.  The Cure GM1 Catalyst Welcome to this month’s newsletter! We’re…

Read More Cure GM1 August 2024 CatalystContinue

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© 2025 CureGM1. Maintained by RRethink.

Facebook Instagram Linkedin TikTok YouTube
  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Join the GM1 Census
      • Contact Us
  • How to Help
    • Take Action
      • Join the GM1 Census
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
        • See Our Fundraising Ideas
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Walmart Spark Good
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Subscribe to Our YouTube Channel
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
    • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study