Leonor’s Story (Update)
Leonor’s Story: An Update Back in 2019, we shared the story of Leonor, who was…
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The Hidden Weight of Rare Disease: What Research Reveals About the Caregiving Burden on GM1 and GM2 Caregivers
The Hidden Weight of Rare Disease What Research Reveals About the Caregiving Burden on GM1…
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April 2026 Cure GM1 Catalyst
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.
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Reece’s Story
Reece’s Story, By His Mother A GM1 Type 2 Story(Published April 1, 2026) “Reece, we…
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How to Handle More Than You Can Handle: Navigating the Emotional Experience of Caring for and Raising Disabled Children with High-Support Needs
What Is GM1 Gangliosidosis? GM1 gangliosidosis is a rare, inherited genetic disorder that affects the…
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Canine Companions and Their Impact on Special Needs Families
What Is GM1 Gangliosidosis? GM1 gangliosidosis is a rare, inherited genetic disorder that affects the…
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Creating a Special Needs Action Roadmap That Supports Your Whole GM1 Family
What Is GM1 Gangliosidosis? GM1 gangliosidosis is a rare, inherited genetic disorder that affects the…
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Kiaan’s Story on NBC 7 San Diego: Raising GM1 Awareness
Don’t Miss Kiaan’s Rare Disease Day Story from NBC 7 in San Diego What Is…
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March 2026 Cure GM1 Catalyst
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.