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Home / Blog - Page 5

Blog

Marley’s Story

February 10, 2024February 27, 2024

How did you feel when your child received a diagnosis of GM1? Early on we…

Read More Marley’s StoryContinue

Jessica’s Story

February 6, 2024February 6, 2024

How did you feel when you received a diagnosis of GM1? When I got my…

Read More Jessica’s StoryContinue

The February 2024 Cure GM1 Catalyst

February 3, 2024February 3, 2024

Rare Disease Day This Rare Disease Day – February 29th – will be a powerful…

Read More The February 2024 Cure GM1 CatalystContinue

The January 2024 Cure GM1 Catalyst

January 6, 2024January 30, 2024

Thank You Donors We raised $76K at the end of 2023 thanks to our generous…

Read More The January 2024 Cure GM1 CatalystContinue

Violet’s Story

December 7, 2023December 7, 2023

The Law Family announces with the sweetest sorrow, the passing of their beloved daughter, Violet…

Read More Violet’s StoryContinue

The December 2023 Cure GM1 Catalyst

December 6, 2023January 30, 2024

Triple Play and Giving Tuesday Gratitude We give our sincere, heartfelt gratitude to everyone who…

Read More The December 2023 Cure GM1 CatalystContinue

Cure GM1 to Collaborate with xCURES for Natural History Study Pilot

December 6, 2023July 1, 2024

Cure GM1, a 501(c)(3) nonprofit organization located in Albany, CA, USA is proud to announce…

Read More Cure GM1 to Collaborate with xCURES for Natural History Study PilotContinue

The November 2023 Cure GM1 Catalyst

November 7, 2023January 28, 2024

Giving Tuesday and Year-End Giving will be Here Soon! November 28th, 2023 is Giving Tuesday….

Read More The November 2023 Cure GM1 CatalystContinue

Over $461K Grant toward Enzyme Replacement Therapy with TEGA Therapeutics

October 24, 2023November 27, 2023

TEGA Therapeutics, Inc. has been awarded a Phase I Small Business and Innovative Research (SBIR)…

Read More Over $461K Grant toward Enzyme Replacement Therapy with TEGA TherapeuticsContinue

The October 2023 Cure GM1 Catalyst

October 3, 2023January 12, 2024

A Rewarding Conference Thank you to everyone who attended this year’s conference, both in person…

Read More The October 2023 Cure GM1 CatalystContinue

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CA 94706, USA
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Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • See Our Fundraising Ideas
      • Fundraise for CureGM1
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study