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Home / Blog - Page 5

Blog

The December 2023 Cure GM1 Catalyst

December 6, 2023January 30, 2024

Triple Play and Giving Tuesday Gratitude We give our sincere, heartfelt gratitude to everyone who…

Read More The December 2023 Cure GM1 CatalystContinue

Cure GM1 to Collaborate with xCURES for Natural History Study Pilot

December 6, 2023July 1, 2024

Cure GM1, a 501(c)(3) nonprofit organization located in Albany, CA, USA is proud to announce…

Read More Cure GM1 to Collaborate with xCURES for Natural History Study PilotContinue

The November 2023 Cure GM1 Catalyst

November 7, 2023January 28, 2024

Giving Tuesday and Year-End Giving will be Here Soon! November 28th, 2023 is Giving Tuesday….

Read More The November 2023 Cure GM1 CatalystContinue

Over $461K Grant toward Enzyme Replacement Therapy with TEGA Therapeutics

October 24, 2023November 27, 2023

TEGA Therapeutics, Inc. has been awarded a Phase I Small Business and Innovative Research (SBIR)…

Read More Over $461K Grant toward Enzyme Replacement Therapy with TEGA TherapeuticsContinue

The October 2023 Cure GM1 Catalyst

October 3, 2023January 12, 2024

A Rewarding Conference Thank you to everyone who attended this year’s conference, both in person…

Read More The October 2023 Cure GM1 CatalystContinue

The September 2023 Cure GM1 Catalyst

September 1, 2023January 12, 2024

Last Chance to Register for the Conference  There are less than two weeks left to…

Read More The September 2023 Cure GM1 CatalystContinue

The August 2023 Cure GM1 Catalyst

July 31, 2023January 3, 2024

For all those who care about making progress toward effective, approved treatments for GM1, this…

Read More The August 2023 Cure GM1 CatalystContinue

Gelb Laboratory Publishes Third GM1 Newborn Screening Paper

July 7, 2023November 29, 2023

Cure GM1 provided seed funding for, and families from the GM1 community provided dried blood…

Read More Gelb Laboratory Publishes Third GM1 Newborn Screening PaperContinue

The July 2023 Cure GM1 Catalyst

July 6, 2023January 3, 2024

Call for Teams for Our Upcoming Move for GM1 Fundraiser  This August our new Move…

Read More The July 2023 Cure GM1 CatalystContinue

The June 2023 Cure GM1 Catalyst

June 6, 2023January 12, 2024

GM1 Day 2023 was a huge success!  We got 11 proclamations for GM1 this year,…

Read More The June 2023 Cure GM1 CatalystContinue

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Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
      • Use Our Fundraising Manual
      • Fundraise with Charity Miles App
      • See Our Fundraising Ideas
      • Used Car Donation
      • GoFundMe
      • JustGiving
      • Facebook
    • Participate in Our Events
      • Rare Disease Day
      • GM1 Gangliosidosis Awareness Day
      • Move for GM1
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Message to the Newly Diagnosed
      • Learn about Data Sharing
      • Contact Us / Have questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study