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CureGM1
Home / Rajiv Raman

Author: Rajiv Raman

Luigi’s story

April 23, 2023January 9, 2024

Hi friends, my name is Luigi. I’m Italian, and I’ll be 3 in October. Unfortunately…

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Diego’s Story

February 28, 2023September 30, 2024

Diego was born on June 29, 2021 in Imola, a small town in Italy. We…

Read More Diego’s StoryContinue

Strahinja’s Story

August 5, 2022November 14, 2023

Hello, I’m Strahinja, 19 months old from Switzerland. I have two older brothers who are fortunately…

Read More Strahinja’s StoryContinue

Fundraise with the Charity Miles App

January 29, 2022December 7, 2023

We are extremely excited to share that Cure GM1 is now available on the Charity…

Read More Fundraise with the Charity Miles AppContinue

Help Cure GM1 by Setting Up a Facebook Fundraiser!

January 1, 2022December 2, 2023

Setting up an online fundraiser on Facebook is quick and easy! Here’s how: 1) Go…

Read More Help Cure GM1 by Setting Up a Facebook Fundraiser!Continue

Buy See’s Candies to Support Cure GM1

December 31, 2021October 14, 2024

Buy, Share, Invite Others See’s Candies has an excellent nonprofit partnership program where 60% of…

Read More Buy See’s Candies to Support Cure GM1Continue

UPenn Million Dollar Bike Ride

December 29, 2021January 13, 2024

http://www.milliondollarbikeride.org/ The route and all the information for race day are on the Million Dollar…

Read More UPenn Million Dollar Bike RideContinue

Donate a Used Car

December 27, 2021September 5, 2024

DONATE YOUR CAR     Buying a new car? Getting rid of an old one? Selling isn’t…

Read More Donate a Used CarContinue

Signs of Hope

December 1, 2021January 13, 2024

Hope and the development of treatments can begin with you! Help spread awareness and fundraise…

Read More Signs of HopeContinue

Cure GM1 Foundation and TEGA Therapeutics Establish Collaboration to Develop GM1 Gangliosidosis Therapy

August 24, 2021November 27, 2023

TEGA Cure GM1 Collaboration PDF TEGA WORLD Pres 2023

Read More Cure GM1 Foundation and TEGA Therapeutics Establish Collaboration to Develop GM1 Gangliosidosis TherapyContinue

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
      • Use Our Fundraising Manual
      • Fundraise with Charity Miles App
      • See Our Fundraising Ideas
      • Used Car Donation
      • GoFundMe
      • JustGiving
      • Facebook
    • Participate in Our Events
      • Rare Disease Day
      • GM1 Gangliosidosis Awareness Day
      • Move for GM1
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study