Blogs

What Is GM1 Gangliosidosis? A Complete Guide for Families

What Is GM1 Gangliosidosis? GM1 Gangliosidosis is a rare, inherited genetic disorder that affects the…

2025 Cure GM1 Impact Report

2025 Cure GM1 Impact Report Check out what you helped us accomplish in 2025 All…

January 2026 Cure GM1 Catalyst
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.
Nate’s Story

Nate’s Story, By His Mother A GM1 Late-infantile, Type 2A Story(Dec. 26, 2025) “I didn’t…

December 2025 Cure GM1 Catalyst
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.
Kinley and Kennedy’s Story

Kinley and Kennedy’s story, by their father “The girls recently hit their 5-year post Gene…

November 2025 Cure GM1 Catalyst
This month as we give thanks, we want to express our deepest gratitude to this strong and resilient community. We’re thankful for all the truly kind support and generosity that fuels the work we do. While we truly wish that no one had to suffer from GM1 gangliosidosis.
Eva & Franco’s Story

Eva and Franco’s story, by their mother “We keep fighting for them and enjoying our…

October 2025 Cure GM1 Catalyst
Let’s take a minute to celebrate Christine, Connie, Niclas, and Kevin for “Doing It for GM1.” Their combined efforts have raised over $35K! The month closed with great news from SylamoreBio, who received a $3 million NIH grant to advance their innovative GM1 research.