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Home / Blog - Page 18

Blog

Sage’s Story

February 28, 2018November 27, 2023

Sage was born on November 20th, 2014, he was a 7 pound 15 ounce 20…

Read More Sage’s StoryContinue

Ashlei and Zachary’s Story

February 28, 2018November 27, 2023

Read More Ashlei and Zachary’s StoryContinue

Evan’s Story

December 14, 2017December 15, 2023

Evan lives in Arizona and is the son of Brad and Marilee Diagnosis – GM1…

Read More Evan’s StoryContinue

BioStrategies, LLC Enzyme Replacement Therapy

September 20, 2017November 14, 2023

Read More BioStrategies, LLC Enzyme Replacement TherapyContinue

IntraBio Inc

September 20, 2017November 14, 2023

  IntraBio Inc is pleased to announce significant progress in the treatment of rare neurodegenerative…

Read More IntraBio IncContinue

Eli’s Story

May 15, 2017November 27, 2023

Eli lives in Arizona and is the son of Brad & Marilee Leishman Diagnosis –…

Read More Eli’s StoryContinue

Autumn’s Story

April 16, 2017November 27, 2023

In Loving Memory of Autumn – A Happy Baby through all of the trials Autumn…

Read More Autumn’s StoryContinue

Lenka’s Story of Hope – Lenka i Dobra Spółka

September 5, 2016November 27, 2023

Thousands and thousands of miles away in Poland, a beautiful, sweet girl named Lenka suffers…

Read More Lenka’s Story of Hope – Lenka i Dobra SpółkaContinue

Ian’s Story and Mission for a Cure

March 15, 2016November 27, 2023

Little Ian was just recently diagnosed this year with Type 1/infantile GM1. Ian is a…

Read More Ian’s Story and Mission for a CureContinue

In Loving Memory, Paxton’s Smiles and Brave Fight

May 16, 2015November 27, 2023

Paxton, a first and only child, was born a seemingly healthy baby boy on Feb….

Read More In Loving Memory, Paxton’s Smiles and Brave FightContinue

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Facebook Instagram Linkedin TikTok YouTube
  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Join the GM1 Census
      • Contact Us
  • How to Help
    • Take Action
      • Join the GM1 Census
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
        • See Our Fundraising Ideas
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Walmart Spark Good
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Subscribe to Our YouTube Channel
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
    • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study