Sofia’s Story
From Sofia’s Mother: My daughter Sofia, 19 months. Unfortunately, she lost her battle against GM1…
-
-
Toby’s Story
From Toby’ Mother: On March 21st, 2015, a beautiful baby boy was delivered weighing a…
-
Lily’s Story
From Lily’s Aunt My niece Lily Faith Tinney had a very severe and aggressive form…
-
Maykel’s Story
From Maykel’s Mother Maykel Cal Oliveira was born on 12/20/2014. He was diagnosed with GM1…
-
Rayan’s Story
From Rayan’s Mother My son’s name is Rayan. He was born Tuesday, January 13, 2015…
-
Augusto’s Story
From Augusto’s Father (sent prior to Augusto’s death) My son’s name is Augusto Barreiros Ribeiro,…
-
Joey’s Story
From Joey’s Father Josiah (Joey) was born on March 2, 2014, a perfectly healthy baby…
-
Reece’s Story
From Reece’s Father Reece Lee William Wells Reece was diagnosed in March 1994 by Dr…
-
Gui’s Story
From Gui’s Mother “The value of things is not in the time they last, but…