Eva & Franco’s Story
Eva and Franco’s story, by their mother “We keep fighting for them and enjoying our…
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October 2025 Cure GM1 Catalyst
Let’s take a minute to celebrate Christine, Connie, Niclas, and Kevin for “Doing It for GM1.” Their combined efforts have raised over $35K! The month closed with great news from SylamoreBio, who received a $3 million NIH grant to advance their innovative GM1 research.
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Nella’s Story
Nella’s story, by her father “Nella is living with GM1 — she’s not defined by…
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Aidan’s Story
Aidan’s story, by his grandmother “Don’t give up hope, but cherish each moment.“ How did…
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September 2025 Cure GM1 Catalyst
What an incredible month August was! Our 2025 International GM1 Community Conference brought together participants from around the world. We were excited to hear from Azafaros that the first trial participant was enrolled in Portugal. We witnessed the power of our shared hope, courage, and commitment.
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Tiffany’s Story
Tiffany’s story by her mother, Ruth “Tiffany has made me a better person. In spite…
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August 2025 Cure GM1 Catalyst
Our annual conference is just three days away on August 8th, and we can’t wait to connect with families from around the world. We’re thrilled to offer live translation services this year, ensuring our global community can fully participate.
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Solomija’s Story
Solomija’s story, by her friend “Soli was beautiful, and she was beautiful in her soul.”…
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July 2025 Cure GM1 Catalyst
This month, our hearts are heavy as we said goodbye to another precious child, sweet Daxton, who passed away just before his fourth birthday. The heartbreaking reality is that most children with GM1 won’t see their fifth birthday—an unimaginable burden that no family should ever have to carry. We cannot and will not remain invisible in the face of this devastating disease.