Channel Your Passion to Fuel Hope for Our Children
Do It For GM1 is a movement to bring us closer to a world where children with GM1 can look forward to longer, healthier lives.
Whether you’re an athlete, a baker, a swimmer, or someone who simply wants to make a difference, there’s a way for you to contribute. Choose the activity that speaks to you, rally your community, and help us accelerate critical research and support families affected by GM1 gangliosidosis.
Together we can do more than raise funds—we can raise hope.
GM1 gangliosidosis affects fewer than 1 in 100,000 children worldwide, making it rare but not invisible to the families living with it every day. These children need treatments that don’t exist yet. Their families need support systems that understand their journey. Researchers need funding to continue the groundbreaking Enzyme Replacement Therapy research that’s already extending lives.
Your passion becomes their progress. Whether you run, bake, swim, or find another way to give, you’re directly funding the research and support that transforms a devastating diagnosis into a story of hope
Here are some activities you can do for GM1:
Turn your daily exercise into lifesaving research funding. Whether you prefer running, walking, or cycling, log your miles through the Charity Miles app and ask people to sponsor your activity. The more miles you complete, the more you can raise for GM1 research. Join hundreds of supporters who’ve already logged thousands of miles and raised funds for the cause.
- Perfect for: Runners, walkers, cyclists, fitness enthusiasts
- Time commitment: Fits into your existing routine
- Get started: Download Charity Miles app and select Cure GM1
Pedal with purpose for GM1 research. Whether you’re a weekend warrior, daily commuter, or cycling enthusiast, your rides can make a real difference. Log your miles on Charity Miles or Strava, organize group rides with friends, or challenge your cycling club to join the cause.
- Perfect for: Cyclists, bike commuters, cycling clubs, fitness enthusiasts
- Time commitment: Individual rides or organized group events
- Get started: Download Charity Miles app or connect your Strava account, then organize your group ride
Make every lap count. Whether you’re training for a triathlon or enjoy weekend pool sessions, sponsored swimming events turn your time in the water into research funding. From solo challenges to team relay events, dive in and make waves for GM1 research.
- Perfect for: Swimmers, water sports enthusiasts, swim teams
- Time commitment: Single events or seasonal challenges
- Get started: Register your swim challenge on Strava and share with your friends
Share your love of baking while raising funds and awareness. Host bake sales, organize cake decorating events, or challenge friends to sponsored baking marathons. Every cookie sold and every cake shared helps fund critical research while bringing communities together around a sweet cause.
- Perfect for: Home bakers, community organizers, school groups
- Time commitment: One-time events or ongoing initiatives
- Get started: Choose your recipe and start a GoFundMe page
Turn your love of food into funding for research. Host dinner parties, organize restaurant fundraising nights, or create cooking challenges with friends. Whether it’s an intimate family gathering or a community potluck event, every meal shared helps nourish hope for GM1 families.
- Perfect for: Food lovers, restaurant owners, community groups, families
- Time commitment: Single events or seasonal dinner series
- Get started: Create your fundraiser on Facebook or GoFundMe
Have another passion? Create a personalized fundraising challenge around what you love. From art marathons to gaming tournaments, puzzle competitions to photography walks—if it brings people together, it can raise funds for GM1 research!
- Perfect for: Anyone with a unique skill or interest
- Time commitment: You decide
- Get started: Contact us to discuss your idea
Get Started
Ready to Do it for GM1? Here’s How:
1. Choose Your Activity: Browse the options above and pick what excites you most. Not sure? Start with Move for GM1—it’s easy to begin and fits any fitness level.
2. Set Your Goal: Decide on your personal challenge. It could be miles to log, events to organize, or dollars to raise. Make it meaningful but achievable.
3. Rally Your Community: Share your commitment with family, friends, and social networks. The most successful fundraisers aren’t just participating—they’re inspiring others to join or support them.
4. Track Your Impact: Watch your efforts convert into real research funding. We’ll keep you updated on how your contributions are making a difference in the lives of children with GM1.
Questions? We’re Here to Help
- Email: info@curegm1.org
- Social: Follow @CureGM1 for updates and inspiration >>
Choose and Set Up a fundraising Platform:
GoFundMe
Just Giving
Wear It For GM1
Impact Stories
Niclas ran every day of Move For GM1 month and finished with a marathon in honor of his children.
Kevin logged hundreds of miles biking for his three sons with GM1 during the Move For GM1 fundraising month.
Diego’s family in Italy honors his memory by organizing a walk every year during Move For GM1 fundraising.