Cure GM1 Data Sharing Initiative

Share GM1 Data Today

The 2025 lysosomal disease data sharing workshops listed below have ended. Today, GM1 families can share medical data for research through the GM1 Matrix, Cure GM1’s patient data platform built with Combined Brain. Learn more and register for the GM1 Matrix.

Past Data Sharing Work

Here is our WORLD Symposium poster, presented in 2025.

We are also pleased to support the UPenn Orphan Disease Center and the Critical Path Institute’s Data Sharing Workflow.