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Home / Blog - Page 10

Blog

So You’ve Bought Donation … Now What?

July 15, 2021October 19, 2023

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Read More So You’ve Bought Donation … Now What?Continue

Grant Distributions Continue to Increase

July 15, 2021October 19, 2023

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Read More Grant Distributions Continue to IncreaseContinue

Charity: Expectations vs. Reality

July 15, 2021October 19, 2023

Sed arcu non odio euismod lacinia. Sit amet cursus sit amet dictum sit. Nunc pulvinar…

Read More Charity: Expectations vs. RealityContinue

Non-profit Explained in Fewer

July 15, 2021October 19, 2023

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Read More Non-profit Explained in FewerContinue

The Next Big Thing in Fundraising

July 15, 2021October 19, 2023

Sed arcu non odio euismod lacinia. Sit amet cursus sit amet dictum sit. Nunc pulvinar…

Read More The Next Big Thing in FundraisingContinue

Will Donation Ever Rule the World?

July 15, 2021October 19, 2023

Sed arcu non odio euismod lacinia. Sit amet cursus sit amet dictum sit. Nunc pulvinar…

Read More Will Donation Ever Rule the World?Continue

Emily’s Story

February 22, 2021January 25, 2024

Like most people, Emily Blu loves spending time with her friends, family, and online. She…

Read More Emily’s StoryContinue

Two New AAV Gene Therapy Clinical Trials for Infantile and Late Infantile GM1 to Begin in Q1/Q2 2021

January 11, 2021November 26, 2023

Cure GM1 is pleased to share the tremendous news that both  Passage Bio and Lysogene have received regulatory approvals…

Read More Two New AAV Gene Therapy Clinical Trials for Infantile and Late Infantile GM1 to Begin in Q1/Q2 2021Continue

Clara’s Story

December 1, 2020November 14, 2023

Please watch Clara’s family’s video: This is a wonderful article about Clara and her family’s…

Read More Clara’s StoryContinue

Cas’ Story

November 23, 2020November 26, 2023

From Cas’ Mother: Cas was a beautiful, happy boy.  He had beautiful eyes and hair…

Read More Cas’ StoryContinue

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Join the GM1 Census
      • Contact Us
  • How to Help
    • Take Action
      • Join the GM1 Census
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
        • See Our Fundraising Ideas
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Walmart Spark Good
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Subscribe to Our YouTube Channel
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
    • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study