Cas’ Story
From Cas’ Mother: Cas was a beautiful, happy boy. He had beautiful eyes and hair…
Sofia and Stephanie
Sofia, developed up to 1 year and 8 months as a normal child, regression began…
Nastya’s Story
Nastya’s Story Until the age of one year old, Nastya grew and developed like an…
Darian’s Story
DONATE We are living a parents worst nightmare. Our sweet son Darian, was recently diagnosed…
Conference Speakers
Cure GM1 Conference Speakers Release Thank you for applying to be a speaker. First Name[text*…
Elena’s Story
Elena was diagnosed at age 23 and is from Russia. She is the rare of…
Lindsay’s Story
Lindsay is kind and humorous. Her favorite movie is Tombstone. She loves theme parks and…
Robert’s Story
Robert Ernest Mitchell Messer suffered from infantile GM1 and passed away on July 30,2019
Stella and Finya
Beautiful Stella and Finya passed away within one day of one another. Finya passed…
Tyson’s Story
Our dear little Tyson was born on September 15, 1989 and lived a short 16…