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Home / Blog - Page 17

Blog

Aiden’s Story

February 28, 2018November 27, 2023

Sweet Boy Aiden Aiden is 5 years old now. Things started off great then at…

Read More Aiden’s StoryContinue

Sage’s Story

February 28, 2018November 27, 2023

Sage was born on November 20th, 2014, he was a 7 pound 15 ounce 20…

Read More Sage’s StoryContinue

Ashlei and Zachary’s Story

February 28, 2018November 27, 2023

Read More Ashlei and Zachary’s StoryContinue

Evan’s Story

December 14, 2017December 15, 2023

Evan lives in Arizona and is the son of Brad and Marilee Diagnosis – GM1…

Read More Evan’s StoryContinue

BioStrategies, LLC Enzyme Replacement Therapy

September 20, 2017November 14, 2023

Read More BioStrategies, LLC Enzyme Replacement TherapyContinue

IntraBio Inc

September 20, 2017November 14, 2023

  IntraBio Inc is pleased to announce significant progress in the treatment of rare neurodegenerative…

Read More IntraBio IncContinue

Eli’s Story

May 15, 2017November 27, 2023

Eli lives in Arizona and is the son of Brad & Marilee Leishman Diagnosis –…

Read More Eli’s StoryContinue

Autumn’s Story

April 16, 2017November 27, 2023

In Loving Memory of Autumn – A Happy Baby through all of the trials Autumn…

Read More Autumn’s StoryContinue

Lenka’s Story of Hope – Lenka i Dobra Spółka

September 5, 2016November 27, 2023

Thousands and thousands of miles away in Poland, a beautiful, sweet girl named Lenka suffers…

Read More Lenka’s Story of Hope – Lenka i Dobra SpółkaContinue

Ian’s Story and Mission for a Cure

March 15, 2016November 27, 2023

Little Ian was just recently diagnosed this year with Type 1/infantile GM1. Ian is a…

Read More Ian’s Story and Mission for a CureContinue

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
      • Use Our Fundraising Manual
      • Fundraise with Charity Miles App
      • See Our Fundraising Ideas
      • Used Car Donation
      • GoFundMe
      • JustGiving
      • Facebook
    • Participate in Our Events
      • Rare Disease Day
      • GM1 Gangliosidosis Awareness Day
      • Move for GM1
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Message to the Newly Diagnosed
      • Learn about Data Sharing
      • Contact Us / Have questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study