Skip to content
CureGM1
  • About GM1 Gangliosidosis
        • About
          • About GM1
          • Disease Overview PDF
          • Clinical Disease Overview Video
          • The Cause
          • Who Gets GM1
          • Incidence of GM1
          • History of GM1
          • Life Expectancy
          • Subtypes of GM1
        • Treatments and Research
          • Advancements and Research
        • If Your Loved One Has GM1
          • Join a Natural History Study
          • Give Samples to the GM1 Biobank
          • Participate in Data Sharing
          • Contact Us
  • How to Help
        • Take Action
        • By Donating
          • Donate
          • Paypal Giving Fund
          • Crypto
          • Contact Us
        • Read and Share Our Stories
          • Community Stories
          • Watch Family Videos
          • Share Your Story
        • For Researchers
          • Grants Overhead Policy
        • By Fundraising
          • See Our Fundraising Ideas
          • Fundraise for CureGM1
            • Use Our Fundraising Manual
            • GoFundMe
            • JustGiving
            • Facebook
          • Used Car Donation
        • Participate in Our Events
          • GM1 Awareness Day
          • Do It for GM1
          • Rare Disease Day
          • Annual Conference
        • By Shopping
          • GM1 Store
          • RaiseRight
          • Buy Chocolate
          • eBay
        • Engage with Cure GM1
          • Contact Us
          • Subscribe to the Newsletter
          • Join the Cure GM1 Parents Facebook Group
          • Join the Friends of Cure GM1 Facebook Group
        • Subscribe to Our YouTube Channel
  • What We Do
        • About the Foundation
          • Mission Statement
          • Board Members and Staff
          • Scientific and Business Advisors
          • Informational Flyer
        • Newsletters
          • View Newsletters
          • Subscribe to the Newsletter
        • Advancements / Research
          • Enzyme Replacement Therapy Project
        • Guide Families
          • Resources For GM1 Families
          • Learn About Data Sharing
          • Contact Us / Have Questions?
        • Drive Progress and Research
          • FDA Engagement, EL-PFDD
          • Voice of the Patient Report
          • Caregiver Preferences Study
DONATE NOW
CureGM1
Home / Blog - Page 17

Blog

Althea’s Story

July 19, 2018November 27, 2023

Althea was born on 23rd September 2016, a beautiful 6lb 8oz baby girl. Thea was…

Read More Althea’s StoryContinue

Paxton’s Story

February 28, 2018November 27, 2023

A beautiful baby boy born February 16, 2012 Paxton is our first and only child,…

Read More Paxton’s StoryContinue

Kate’s Story #AWin4Kate

February 28, 2018November 27, 2023

#AWin4Kate Kate was born May 17, 2011, a healthy and happy baby. We always thought…

Read More Kate’s Story #AWin4KateContinue

Joe’s Story

February 28, 2018November 27, 2023

A special boy that fought to the end Joe was born 4 weeks early by…

Read More Joe’s StoryContinue

Paola’s Story

February 28, 2018November 27, 2023

Una Bellisima Bambina Paola is a beautiful child born on June 29, 2013. She was…

Read More Paola’s StoryContinue

Aiden’s Story

February 28, 2018November 27, 2023

Sweet Boy Aiden Aiden is 5 years old now. Things started off great then at…

Read More Aiden’s StoryContinue

Sage’s Story

February 28, 2018November 27, 2023

Sage was born on November 20th, 2014, he was a 7 pound 15 ounce 20…

Read More Sage’s StoryContinue

Ashlei and Zachary’s Story

February 28, 2018November 27, 2023

Read More Ashlei and Zachary’s StoryContinue

Evan’s Story

December 14, 2017December 15, 2023

Evan lives in Arizona and is the son of Brad and Marilee Diagnosis – GM1…

Read More Evan’s StoryContinue

BioStrategies, LLC Enzyme Replacement Therapy

September 20, 2017November 14, 2023

Read More BioStrategies, LLC Enzyme Replacement TherapyContinue

Page navigation

Previous PagePrevious 1 … 15 16 17 18 Next PageNext

501(c)(3) EIN: #47-3154419

PO Box 6890, Albany
CA 94706, USA
1-510-306-2460

Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

Useful Links

  • Privacy Policy
  • Terms and Conditions
  • Contact Us
  • Subscribe to Newsletter
  • Refund Policy
Your Help Matters

© 2025 CureGM1. Maintained by RRethink.

Facebook Instagram Linkedin TikTok YouTube
  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • See Our Fundraising Ideas
      • Fundraise for CureGM1
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study