Armand’s Story
From Armand’s Mother My son Armand Hayes was diagnosed in 2011. We are doing all…
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Anisa’s Story
From Anisa’s Mother My last child has GM1. I also have two girls and a…
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Lydia’s Story
From Lydia’s Mother Lydia was born, apparently healthy, a normal pregnancy. She was born with…
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Cody’s Story
From Cody’s Mother Our son Cody Butcher is now 3. He was born on the…
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2019 The Jackson Laboratory – Natural History Studies of Two GM1 Mouse Models
Scientific researchers Cat Lutz and Aamir Zuberi at the Rare Disease Center of the Jackson…
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T-Jay’s Story
In these images, T-Jay is nearly 18 months old. He was diagnosed with GM1…
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Maria Eduarda’s Story
Maria Eduarda was born on 07/07/2015. She was diagnosed at one year of age with…
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Sara’s Story
A Message from Sara’s Mother Hello Friends and Families We are an affected family from…
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Florence’s Story
Florence has late infantile GM1. She was diagnosed when she was 2. She has real…