Blogs

Ian’s Story and Mission for a Cure

Little Ian was just recently diagnosed this year with Type 1/infantile GM1. Ian is a…

In Loving Memory, Paxton’s Smiles and Brave Fight

Paxton, a first and only child, was born a seemingly healthy baby boy on Feb….

In Loving Memory of Zac Milo Horspool

Born: Sat., Oct. 13, 2012 Died: Sat., Apr. 18, 2015 A precious angel returned to live with…

Frieda’s Story

From Frieda’s Father Hello, My four year old daughter “Frieda” is diagnosed in GM1. We…

Elena’s Story

From Elena’s Mother Elena was born healthy on 2/7/02. A very much cherished daughter after…