Skip to content
CureGM1
  • About GM1 Gangliosidosis
        • About
          • About GM1
          • Disease Overview PDF
          • Clinical Disease Overview Video
          • The Cause
          • Who Gets GM1
          • Incidence of GM1
          • History of GM1
          • Life Expectancy
          • Subtypes of GM1
        • Treatments and Research
          • Advancements and Research
        • If Your Loved One Has GM1
          • Join a Natural History Study
          • Give Samples to the GM1 Biobank
          • Participate in Data Sharing
          • Contact Us
  • How to Help
        • Take Action
        • By Donating
          • Donate
          • Paypal Giving Fund
          • Crypto
          • Contact Us
        • Read and Share Our Stories
          • Community Stories
          • Watch Family Videos
          • Share Your Story
        • For Researchers
          • Grants Overhead Policy
        • By Fundraising
          • Fundraise for CureGM1
          • Use Our Fundraising Manual
          • Fundraise with Charity Miles App
          • See Our Fundraising Ideas
          • Used Car Donation
          • GoFundMe
          • JustGiving
          • Facebook
        • Participate in Our Events
          • Rare Disease Day
          • GM1 Gangliosidosis Awareness Day
          • Move for GM1
          • Annual Conference
        • By Shopping
          • GM1 Store
          • RaiseRight
          • Buy Chocolate
          • eBay
        • Engage with Cure GM1
          • Contact Us
          • Subscribe to the Newsletter
          • Join the Cure GM1 Parents Facebook Group
          • Join the Friends of Cure GM1 Facebook Group
        • Subscribe to Our YouTube Channel
  • What We Do
        • About the Foundation
          • Mission Statement
          • Board Members and Staff
          • Scientific and Business Advisors
          • Informational Flyer
        • Newsletters
          • View Newsletters
          • Subscribe to the Newsletter
        • Advancements / Research
          • Enzyme Replacement Therapy Project
        • Guide Families
          • Message to the Newly Diagnosed
          • Learn about Data Sharing
          • Contact Us / Have questions?
        • Drive Progress and Research
          • FDA Engagement, EL-PFDD
          • Voice of the Patient Report
          • Caregiver Preferences Study
DONATE NOW
CureGM1
Home / Blog - Page 7

Blog

Rare Disease Day Photo Contest Entry Form

January 14, 2023November 14, 2023

The 2023 Cure GM1 RDD Photo Contest Calling all photographers! Photo submissions for the 2023…

Read More Rare Disease Day Photo Contest Entry FormContinue

Cure GM1 Caregiver Preferences Study has been published

January 10, 2023November 26, 2023

Our Caregiver Preferences study, The caregivers’ assessments of symptom impact and most important symptoms to…

Read More Cure GM1 Caregiver Preferences Study has been publishedContinue

The January 2023 Cure GM1 Catalyst

January 3, 2023January 13, 2024

Thank You Thank you for your support in 2022! Our mission to help develop effective…

Read More The January 2023 Cure GM1 CatalystContinue

Strahinja’s Story

August 5, 2022November 14, 2023

Hello, I’m Strahinja, 19 months old from Switzerland. I have two older brothers who are fortunately…

Read More Strahinja’s StoryContinue

Theodora’s Story

May 13, 2022January 25, 2024

Theodora was born in October 2021. She is a very happy and smiley baby. She…

Read More Theodora’s StoryContinue

Camden’s Story

May 3, 2022January 3, 2024

Camden is a happy child. He loves people. Hearing certain names lights his face up….

Read More Camden’s StoryContinue

Sweet Iris’ Story

February 11, 2022December 14, 2023

About Sweet Iris Iris was diagnosed with Juvenile GM1 when she was 5 and a…

Read More Sweet Iris’ StoryContinue

Kinley and Kennedy’s Story

February 1, 2022November 14, 2023

Our Journey to Diagnosis By Kylie Harrison “Two of your children have a fatal, untreatable…

Read More Kinley and Kennedy’s StoryContinue

Fundraise with the Charity Miles App

January 29, 2022December 7, 2023

We are extremely excited to share that Cure GM1 is now available on the Charity…

Read More Fundraise with the Charity Miles AppContinue

Make a Cure GM1 Birthday Fundraiser

January 2, 2022December 2, 2023

How to set up a Cure GM1 Birthday Fundraiser on Facebook Your birthday can help…

Read More Make a Cure GM1 Birthday FundraiserContinue

Page navigation

Previous PagePrevious 1 … 5 6 7 8 9 … 18 Next PageNext

501(c)(3) EIN: #47-3154419

PO Box 6890, Albany
CA 94706, USA
1-510-306-2460

Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

Useful Links

  • Privacy Policy
  • Terms and Conditions
  • Contact Us
  • Subscribe to Newsletter
  • Refund Policy
Your Help Matters

© 2025 CureGM1. Maintained by RRethink.

Facebook Instagram Linkedin TikTok YouTube
  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
      • Use Our Fundraising Manual
      • Fundraise with Charity Miles App
      • See Our Fundraising Ideas
      • Used Car Donation
      • GoFundMe
      • JustGiving
      • Facebook
    • Participate in Our Events
      • Rare Disease Day
      • GM1 Gangliosidosis Awareness Day
      • Move for GM1
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Message to the Newly Diagnosed
      • Learn about Data Sharing
      • Contact Us / Have questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study