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Home / Blog - Page 7

Blog

The May 2023 Cure GM1 Catalyst

May 1, 2023January 13, 2024

Kicking Off GM1 Day 2023! A worldwide movement, GM1 Awareness Day was started to provide…

Read More The May 2023 Cure GM1 CatalystContinue

Luigi’s story

April 23, 2023January 9, 2024

Hi friends, my name is Luigi. I’m Italian, and I’ll be 3 in October. Unfortunately…

Read More Luigi’s storyContinue

The April 2023 Cure GM1 Catalyst

April 5, 2023January 12, 2024

Take Action Take Action for GM1 Day Now is the time to buy GM1 Day…

Read More The April 2023 Cure GM1 CatalystContinue

2022 Cure GM1 Impact Report – Impact in 2022 and Beyond

March 30, 2023November 14, 2023

Our summary of impact in 2022 is now available to read. After some time reflecting,…

Read More 2022 Cure GM1 Impact Report – Impact in 2022 and BeyondContinue

The March 2023 Cure GM1 Catalyst

March 7, 2023January 3, 2024

Amazing Advocacy this Rare Disease Day Our community really showed up to participate in Rare…

Read More The March 2023 Cure GM1 CatalystContinue

Diego’s Story

February 28, 2023September 30, 2024

Diego was born on June 29, 2021 in Imola, a small town in Italy. We…

Read More Diego’s StoryContinue

The Voice of the Patient Report from the GM1 Gangliosidosis Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD)

February 23, 2023November 14, 2023

You can now download and read the touching and impactful summary of input from GM1…

Read More The Voice of the Patient Report from the GM1 Gangliosidosis Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD)Continue

About the GM1 Gangliosidosis Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting with FDA

February 6, 2023November 14, 2023

The GM1 Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD) was held on Friday, October 14 as…

Read More About the GM1 Gangliosidosis Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting with FDAContinue

The February 2023 Cure GM1 Catalyst

February 1, 2023January 13, 2024

Rare Disease Day is on February 28, 2023. Leading up to the day, there are…

Read More The February 2023 Cure GM1 CatalystContinue

Rare Disease Day Photo Contest Entry Form

January 14, 2023November 14, 2023

The 2023 Cure GM1 RDD Photo Contest Calling all photographers! Photo submissions for the 2023…

Read More Rare Disease Day Photo Contest Entry FormContinue

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Facebook Instagram Linkedin TikTok YouTube
  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Join the GM1 Census
      • Contact Us
  • How to Help
    • Take Action
      • Join the GM1 Census
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
        • See Our Fundraising Ideas
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Walmart Spark Good
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Subscribe to Our YouTube Channel
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
    • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study