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News

The March 2024 Cure GM1 Catalyst

February 29, 2024March 27, 2024

2024 Cure GM1 Virtual Conference We are excited to start planning our annual conference for…

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The February 2024 Cure GM1 Catalyst

February 3, 2024February 3, 2024

Rare Disease Day This Rare Disease Day – February 29th – will be a powerful…

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The January 2024 Cure GM1 Catalyst

January 6, 2024January 30, 2024

Thank You Donors We raised $76K at the end of 2023 thanks to our generous…

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The December 2023 Cure GM1 Catalyst

December 6, 2023January 30, 2024

Triple Play and Giving Tuesday Gratitude We give our sincere, heartfelt gratitude to everyone who…

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The November 2023 Cure GM1 Catalyst

November 7, 2023January 28, 2024

Giving Tuesday and Year-End Giving will be Here Soon! November 28th, 2023 is Giving Tuesday….

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The October 2023 Cure GM1 Catalyst

October 3, 2023January 12, 2024

A Rewarding Conference Thank you to everyone who attended this year’s conference, both in person…

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The September 2023 Cure GM1 Catalyst

September 1, 2023January 12, 2024

Last Chance to Register for the Conference  There are less than two weeks left to…

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The August 2023 Cure GM1 Catalyst

July 31, 2023January 3, 2024

For all those who care about making progress toward effective, approved treatments for GM1, this…

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The July 2023 Cure GM1 Catalyst

July 6, 2023January 3, 2024

Call for Teams for Our Upcoming Move for GM1 Fundraiser  This August our new Move…

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The June 2023 Cure GM1 Catalyst

June 6, 2023January 12, 2024

GM1 Day 2023 was a huge success!  We got 11 proclamations for GM1 this year,…

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CA 94706, USA
1-510-306-2460

Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • See Our Fundraising Ideas
      • Fundraise for CureGM1
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study