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CureGM1
  • About GM1 Gangliosidosis
        • About
          • About GM1
          • Disease Overview PDF
          • Clinical Disease Overview Video
          • The Cause
          • Who Gets GM1
          • Incidence of GM1
          • History of GM1
          • Life Expectancy
          • Subtypes of GM1
        • Treatments and Research
          • Advancements and Research
        • If Your Loved One Has GM1
          • Join a Natural History Study
          • Give Samples to the GM1 Biobank
          • Participate in Data Sharing
          • Contact Us
  • How to Help
        • Take Action
        • By Donating
          • Donate
          • Paypal Giving Fund
          • Crypto
          • Contact Us
        • Read and Share Our Stories
          • Community Stories
          • Watch Family Videos
          • Share Your Story
        • For Researchers
          • Grants Overhead Policy
        • By Fundraising
          • Fundraise for CureGM1
          • Use Our Fundraising Manual
          • Fundraise with Charity Miles App
          • See Our Fundraising Ideas
          • Used Car Donation
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          • Rare Disease Day
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          • Move for GM1
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  • What We Do
        • About the Foundation
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          • Scientific and Business Advisors
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        • Newsletters
          • View Newsletters
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        • Advancements / Research
          • Enzyme Replacement Therapy Project
        • Guide Families
          • Message to the Newly Diagnosed
          • Learn about Data Sharing
          • Contact Us / Have questions?
        • Drive Progress and Research
          • FDA Engagement, EL-PFDD
          • Voice of the Patient Report
          • Caregiver Preferences Study
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Cure GM1 Data Sharing Initiative

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2025 International GM1 Community Conference

2025 International GM1 Community Conference

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Move for GM1 Fundraiser

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Cure GM1 Refund Policy

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2023 Conference Details

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2023 International GM1 Community Conference

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GM1 Gangliosidosis Subtypes

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PO Box 6890, Albany
CA 94706, USA
1-510-306-2460

Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
      • Use Our Fundraising Manual
      • Fundraise with Charity Miles App
      • See Our Fundraising Ideas
      • Used Car Donation
      • GoFundMe
      • JustGiving
      • Facebook
    • Participate in Our Events
      • Rare Disease Day
      • GM1 Gangliosidosis Awareness Day
      • Move for GM1
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Message to the Newly Diagnosed
      • Learn about Data Sharing
      • Contact Us / Have questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study