Joaquim and Sofia’s Story
Joaquim and Sofia’s story, by their father “Our current focus is on keeping Joaquim as…
Lucas’s Story
Lucas’s story, by his mother “Because of GM1, Lucas has not been able to grow…
Aidan’s Story
Aidan’s story, by his mother “This is my son, Aidan, who was diagnosed with GM1…
Lingxi’s Story
Lingxi’s GM1 Story, as told by her father Her GM1 Story ” We have been…
Hampus, Julia, And Isabella’s Story
Hampus, Julia, and Isabella’s Story Their GM1 Stories “It is heartbreaking not knowing what tomorrow…
Denisa’s Story
DENISA’S STORY My Story “Hi, my name is Dana. I have a daughter with Juvenile…
Peyton’s Story
PEYTON’S STORY My Story “It has completely changed our family. We are closer than ever…
Luke & Isaiah’s Story
LUKE & ISAIAH our Story “Luke and Isaiah faced this horrible disease together, dying just…
Iris’ Story from Her Brother’s Perspective
As told by Iris’ brother. How has GM1 gangliosidosis affected your life? GM1 Gangliosidosis is…
Marley’s Story
How did you feel when your child received a diagnosis of GM1? Early on we…