Nastya’s Story
Nastya’s Story Until the age of one year old, Nastya grew and developed like an ordinary child. At the age…
Nastya’s Story Until the age of one year old, Nastya grew and developed like an ordinary child. At the age…
DONATE We are living a parents worst nightmare. Our sweet son Darian, was recently diagnosed with a very rare and…
Elena was diagnosed at age 23 and is from Russia. She is the rare of the rare and suffers from…
Lindsay is kind and humorous. Her favorite movie is Tombstone. She loves theme parks and time with her family. She…
Robert Ernest Mitchell Messer suffered from infantile GM1 and passed away on July 30,2019
Beautiful Stella and Finya passed away within one day of one another. Finya passed away at age 8 on…
Our dear little Tyson was born on September 15, 1989 and lived a short 16 months. He died on January…
From James’ Mother: James was diagnosed with GM1 Gangliosidosis Type 2 Juvenile on November 7, 2019. After 6 years of…
From Eve’s Mother We live in Ukraine in the Odessa region. Eve was born on 05/20/2018 and she appeared…
From Pia’s Mother: Hello, my name is Stefany Sanchez. I am 23 years old. My husband is Lucas Canteros. We…