Daxton’s Story
Daxton’s story, by his mother “Daxton was one of a kind, and we miss him…
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Fiona’s Story
Fiona’s story, by her father “Parenting, I learned, is about loving my child today.“ How…
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Kiaan’s Story
Kiaan’s story, by his mother “I wish people understood that rare doesn’t mean less real“…
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Peyton’s Story
Peyton Claire’s story, by her mom “The light she has brought into our lives has…
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Carter Michael’s Story
Carter’s story, by his mother “Carter Michael was diagnosed with GM1. He was our precious…
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Gael’s Story
Gael’s story, by his mother “Gael was diagnosed with Type 1 infantile GM1 on his…
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Milah’s Story
Milah’s story, by her mother “Milah was diagnosed with GM1 Type 1 at 8 months…
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Ben’s Story
Ben’s story, by his mother “Ben was diagnosed with juvenile GM1 on December 22, 2023,…
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Joaquim and Sofia’s Story
Joaquim and Sofia’s story, by their father “Our current focus is on keeping Joaquim as…