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Home / Stories - Page 3

Stories

Asia’s Story

May 2, 2023November 27, 2023

This is the story of Asia, a little princess born on December 6, 2020. Asia…

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Luigi’s story

April 23, 2023January 9, 2024

Hi friends, my name is Luigi. I’m Italian, and I’ll be 3 in October. Unfortunately…

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Diego’s Story

February 28, 2023September 30, 2024

Diego was born on June 29, 2021 in Imola, a small town in Italy. We…

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Strahinja’s Story

August 5, 2022November 14, 2023

Hello, I’m Strahinja, 19 months old from Switzerland. I have two older brothers who are fortunately…

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Theodora’s Story

May 13, 2022January 25, 2024

Theodora was born in October 2021. She is a very happy and smiley baby. She…

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Camden’s Story

May 3, 2022January 3, 2024

Camden is a happy child. He loves people. Hearing certain names lights his face up….

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Sweet Iris’ Story

February 11, 2022December 14, 2023

About Sweet Iris Iris was diagnosed with Juvenile GM1 when she was 5 and a…

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Kinley and Kennedy’s Story

February 1, 2022November 14, 2023

Our Journey to Diagnosis By Kylie Harrison “Two of your children have a fatal, untreatable…

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Emily’s Story

February 22, 2021January 25, 2024

Like most people, Emily Blu loves spending time with her friends, family, and online. She…

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Clara’s Story

December 1, 2020November 14, 2023

Please watch Clara’s family’s video: This is a wonderful article about Clara and her family’s…

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • See Our Fundraising Ideas
      • Fundraise for CureGM1
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study