Lucas’s Story
Lucas’s story, by his mother “Because of GM1, Lucas has not been able to grow…
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Aidan’s Story
Aidan’s story, by his mother “This is my son, Aidan, who was diagnosed with GM1…
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Lingxi’s Story
Lingxi’s GM1 Story, as told by her father Her GM1 Story ” We have been…
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Hampus, Julia, And Isabella’s Story
Hampus, Julia, and Isabella’s Story Their GM1 Stories “It is heartbreaking not knowing what tomorrow…
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Denisa’s Story
DENISA’S STORY My Story “Hi, my name is Dana. I have a daughter with Juvenile…
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Peyton’s Story
PEYTON’S STORY My Story “It has completely changed our family. We are closer than ever…
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Luke & Isaiah’s Story
LUKE & ISAIAH our Story “Luke and Isaiah faced this horrible disease together, dying just…
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Iris’ Story from Her Brother’s Perspective
As told by Iris’ brother. How has GM1 gangliosidosis affected your life? GM1 gangliosidosis is…
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Marley’s Story
How did you feel when your child received a diagnosis of GM1? Early on we…