From Frieda’s Father


My four year old daughter “Frieda” is diagnosed in GM1. We searched for three years and last December we got this horrible diagnosis.
In Germany it’s very hard to get help. Nobody wants to conduct research in GM1 because we were told that there are only 15 living children in our country.
We are still at the beginning in building a network and we are thankful for any help that we can get. We hope to be right here and that you can perhaps help us.
If we can do anything for you here in Germany please let us know about it.
Sorry for my English! I am trying my best.