From Lily’s Aunt

My niece Lily Faith Tinney had a very severe and aggressive form of GM1 Gangliosidosis. She was born on December 15 2012 and we lost her May 7 2014. She was diagnosed at 14 months and we lost her at 16 months. We pray her legacy will live on. We hate knowing other families are suffering the way we have. We will never forget our Lily Bug.