From Saubhav’s Father

My child’s name is Saubhav Singh.  He was diagnosed at age two with GM1 Gangliosidosis by the CMC  Vellore Hospital. According to the doctors, there is no treatment for this disease. Seizures started in  October 2017 and in December we was admitted to the hospital and the doctors worked very hard to stabilize him. After discharge, we have continued the care of our son and we are hoping there might be something to help him.