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CureGM1
  • About GM1 Gangliosidosis
        • About
          • About GM1
          • Disease Overview PDF
          • Clinical Disease Overview Video
          • The Cause
          • Who Gets GM1
          • Incidence of GM1
          • History of GM1
          • Life Expectancy
          • Subtypes of GM1
        • Treatments and Research
          • Advancements and Research
        • If Your Loved One Has GM1
          • Join a Natural History Study
          • Give Samples to the GM1 Biobank
          • Participate in Data Sharing
          • Join the GM1 Census
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  • How to Help
        • Take Action
          • Join the GM1 Census
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        • Read and Share Our Stories
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        • For Researchers
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            • See Our Fundraising Ideas
            • Use Our Fundraising Manual
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        • Advancements / Research
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        • Drive Progress and Research
          • FDA Engagement, EL-PFDD
          • Voice of the Patient Report
          • Caregiver Preferences Study
        • Informational Flyer
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CureGM1

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Our annual events Calendar

Our annual events Calendar

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GM1 Census

GM1 Census

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Do It For GM1

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Resources For GM1 Families

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Joaquim and Sofia’s Story

October 18, 2024April 22, 2025

Joaquim and Sofia’s story, by their father “Our current focus is on keeping Joaquim as…

Read More Joaquim and Sofia’s StoryContinue

Lingxi’s Story

July 14, 2024February 13, 2025

Lingxi’s GM1 Story, as told by her father Her GM1 Story ” We have been…

Read More Lingxi’s StoryContinue

Hampus, Julia, And Isabella’s Story

July 14, 2024February 13, 2025

Hampus, Julia, and Isabella’s Story Their GM1 Stories “It is heartbreaking not knowing what tomorrow…

Read More Hampus, Julia, And Isabella’s StoryContinue

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CA 94706, USA
1-510-306-2460

Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

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© 2025 CureGM1. Maintained by RRethink.

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Join the GM1 Census
      • Contact Us
  • How to Help
    • Take Action
      • Join the GM1 Census
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
        • See Our Fundraising Ideas
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • See Our Annual Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Walmart Spark Good
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Subscribe to Our YouTube Channel
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
    • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study