2025 International GM1 Community Conference

This event has concluded. This page is kept as an archive of the 2025 International GM1 Community Conference. For the most recent conference, visit the 2026 GM1 Community Conference page.

International GM1 Community Conference August 7-8 2025 in Irvine California - group photo with event banner
CURE GM1 FOUNDATION
2025 International GM1 Community Conference

The Cure GM1 Foundation’s Annual GM1 Community Conference is an invaluable resource for families, researchers, and biotech companies. In 2025, we held a hybrid event in Irvine, California, with both in-person and virtual attendance. This community conference is made possible through the generous support of our event sponsors, allowing families to attend free of charge. Please consider supporting our work with a donation.

Uniting Families,
Researchers, & Biotechs In
The Fight Against GM1

Each year, the Cure GM1 conference galvanizes our global community, fostering a sense of solidarity and shared purpose. It’s a platform where real change begins, through advocacy, increased awareness, and the acceleration of the drug development process. For supporters, sponsors, and donors, this event offers a chance to directly contribute to these efforts, impacting lives and driving forward the mission of finding possible treatments for GM1 gangliosidosis. Your support helps sustain this vital gathering, amplifying its reach and effectiveness year after year.

Cure GM1 Foundation - Hope, Every Donation Helps - teal donation banner

Support the Fight Against GM1! Donate Today Help Us Make a Difference!

The main day of the conference was Friday, August 8th, with a welcome dinner on the 7th for those arriving early. The event was hybrid, with both in-person and virtual attendance.

Meet the experts and GM1 community members speaking at our Conference.

Held in Irvine, California at the Hyatt Regency

The Hyatt Regency Irvine is located at 17900 Jamboree Rd, Irvine, in Orange County. The closest airport is SNA in Santa Ana.

Check our Accessible Travel Guide for useful information about accessibility services at the airport and for ground transportation to the hotel.

Translation services (for both in-person and virtual attendance)

We will offer simultaneous translation for almost all languages through Wordly. This service provides live two-way translation for over 3,000 language pairs, allowing you to speak in your native language and receive automatic translation. The platform is user-friendly and easy to navigate.

Photo from 2025 International GM1 Community Conference

Check our manual to help you set up this service:

Help support the GM1 community while bidding on amazing experiences! Our online auction features carefully curated items donated by generous supporters who believe in our mission.

How it works: Browse the auction items, place your bids, and have fun as your support makes a real difference. All proceeds directly benefit the Cure GM1 Foundation’s work to find treatments and support families on this journey.

Bidding closed August 9th. Thank you to everyone who donated items and placed bids.

Disney World Wonder four night stay for six guests, auction prize
Disney World Wonder – 4 Night Stay for 6 Guests
Hawaii seven night stay for two guests, auction prize
Hawaii – 2 guests, 7 night stay
Mexican resort stay for four guests, four nights, two bedrooms, auction prize
Mexican Resorts – 4 guests, 4 nights, 2 bedrooms
Silverthorne Colorado vacation rental - conference accommodation collage
5 Night Stay in Silverthorne Colorado

Our Sponsors

Please consider requesting a sponsorship package by mailing info@curegm1.org or donating to support our event.

2025 GM1 Community Conference sponsors - Azafaros, GEMMABio, Sanofi, Ultragenyx, EZMicro and community supporters

Sponsorship covers overhead costs and keeps the conference free for families. To sponsor a future conference and support patient advocacy, awareness, and community, contact us at info@curegm1.org

From the Hearts of Our Attendees

Real Stories, Real Impact: Attendee Experiences

  • “It was such an honor to take part in today’s conference. Thank you so much to the Cure GM1 Foundation for organizing such a wonderful day.”
    Cure GM1
    Conference Attendee
  • “Thank you to the Cure GM1 Foundation for organizing this meeting, and to all the speakers who have made it possible for us to learn about the current progress in the fight against GM1, both in clinical trials and in patient or caregiver care.”
    Cure GM1
    Conference Attendee
  • “It was wonderfully informative and encouraging. Congratulations on putting together a panel that seemed to cover all aspects of the subject.”
    Cure GM1
    Conference Attendee

Buy Cure GM1 Conference Merch

Frequently Asked Questions

If you have any other questions not answered here, please feel free to reach out to info@curegm1.org

The conference was held on August 7-8, 2025, in Irvine, CA, with a welcome dinner on the 7th and the main program on the 8th. Virtual tickets were also offered for those who could not attend in person.

There were registration fees for non-GM1 families. Registration was free for GM1 families.

Registration for the 2025 conference has closed. See the 2026 GM1 Community Conference page for the latest conference.

Yes, we’re very excited to hear all the updates and news!

The talks target the general public.

Absolutely! You can help by attending and honoring your child’s legacy while supporting patient advocacy and other families.

No, there is no app for our conference.

 Recordings were made available to registrants only.

Yes, the conference is open to anyone worldwide and there are virtual ticket options.

Yes! The 2025 conference offered many opportunities to connect, including in person.

Yes, we welcome any extended family members.

Support to Ensure that the GM1 Conference Continues!

Our conference provides a valuable resource for GM1 families and our community. Donate to Cure GM1 to ensure continued access to these resources.