Kinley and Kennedy’s Story
Our Journey to Diagnosis By Kylie Harrison “Two of your children have a fatal, untreatable…
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Make a Cure GM1 Birthday Fundraiser
How to set up a Cure GM1 Birthday Fundraiser on Facebook Your birthday can help…
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Yard Sale Fundraiser Tips
We all have the ability to help a good cause! A very special thank…
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Clara’s Story
Please watch Clara’s family’s video: This is a wonderful article about Clara and her family’s…
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Lindsay’s Story
Lindsay is kind and humorous. Her favorite movie is Tombstone. She loves theme parks and…
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Joey and Oliver’s Story
Joey, diagnosed with Juvenile GM1 on April 21, 2017 Oliver, asymptomatic, but diagnosed with Juvenile…
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Contact Us
Name[text* Name class:form-control] Child’s Name[text ChildName class:form-control] Email Address[email* Email class:form-control] Address 1[text* Address1 class:form-control]…
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Tiffany’s Story
From Tiffany’s Mother Tiffany is my beautiful daughter, who was diagnosed when she was 10….
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Niamh’s Story
From Niamh’s Mother My 10 year old daughter Niamh started having seizures at age 2….