Joey and Oliver’s Story
Joey, diagnosed with Juvenile GM1 on April 21, 2017 Oliver, asymptomatic, but diagnosed with Juvenile…
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Name[text* Name class:form-control] Child’s Name[text ChildName class:form-control] Email Address[email* Email class:form-control] Address 1[text* Address1 class:form-control]…
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Keeton’s Story
From Keeton’s Father Keeton Elder, Keeton had a normal birth and enjoyed playing baseball and…
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Reece’s Story
From Reece’s Father Reece Lee William Wells Reece was diagnosed in March 1994 by Dr…
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Aimee’s Story
From Aimee’s Mother My little girl was 9 months old when she was diagnosed in…
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Allison’s Story
From Allison’s Mother Our sweet Allison Layne was born May 22, 1985 in Tyler, TX….
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Niamh’s Story
From Niamh’s Mother My 10 year old daughter Niamh started having seizures at age 2….
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Saubhav’s Story
From Saubhav’s Father My child’s name is Saubhav Singh. He was diagnosed at age two…
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Candela’s Story
From Candela’s Grandmother My name is Silvia Fernández. I am a grandmother of three beautiful…