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Home / Blog - Page 6

Blog

The September 2023 Cure GM1 Catalyst

September 1, 2023January 12, 2024

Last Chance to Register for the Conference  There are less than two weeks left to…

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The August 2023 Cure GM1 Catalyst

July 31, 2023January 3, 2024

For all those who care about making progress toward effective, approved treatments for GM1, this…

Read More The August 2023 Cure GM1 CatalystContinue

Gelb Laboratory Publishes Third GM1 Newborn Screening Paper

July 7, 2023November 29, 2023

Cure GM1 provided seed funding for, and families from the GM1 community provided dried blood…

Read More Gelb Laboratory Publishes Third GM1 Newborn Screening PaperContinue

The July 2023 Cure GM1 Catalyst

July 6, 2023January 3, 2024

Call for Teams for Our Upcoming Move for GM1 Fundraiser  This August our new Move…

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The June 2023 Cure GM1 Catalyst

June 6, 2023January 12, 2024

GM1 Day 2023 was a huge success!  We got 11 proclamations for GM1 this year,…

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Asia’s Story

May 2, 2023November 27, 2023

This is the story of Asia, a little princess born on December 6, 2020. Asia…

Read More Asia’s StoryContinue

The May 2023 Cure GM1 Catalyst

May 1, 2023January 13, 2024

Kicking Off GM1 Day 2023! A worldwide movement, GM1 Awareness Day was started to provide…

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Luigi’s story

April 23, 2023January 9, 2024

Hi friends, my name is Luigi. I’m Italian, and I’ll be 3 in October. Unfortunately…

Read More Luigi’s storyContinue

The April 2023 Cure GM1 Catalyst

April 5, 2023January 12, 2024

Take Action Take Action for GM1 Day Now is the time to buy GM1 Day…

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2022 Cure GM1 Impact Report – Impact in 2022 and Beyond

March 30, 2023November 14, 2023

Our summary of impact in 2022 is now available to read. After some time reflecting,…

Read More 2022 Cure GM1 Impact Report – Impact in 2022 and BeyondContinue

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • See Our Fundraising Ideas
      • Fundraise for CureGM1
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study