Summer has a way of slowing things down, and we hope you are finding joy in relaxed routines, longer days, and more time with your precious families. I’m pleased to introduce our coordinator for this year’s virtual International Cure GM1 Community Conference, Cleopatra Frazier. She’ll be here to answer all of your questions and help us create an impactful and meaningful experience for all of you Oct. 2. More about Cleopatra below.
Happy June! This is our favorite month because it means International GM1 Gangliosidosis Awareness Day 2026 is almost here. Our June 2026 Cure GM1 Catalyst newsletter covers GM1 Awareness Day results, community stories, the latest research, and ways to get involved.
Cure GM1 is dedicated to investing in research and to the development of multiple treatment…
Maria Bacon waves as she drives past two teenagers on their bikes, loaded with fishing…
Happy May!
This is our favorite month because it means International GM1 Gangliosidosis Awareness Day 2026 is almost here!
For us, May 23 isn’t just a date on the calendar. It’s a powerful opportunity to honor the journeys of those impacted by GM1 and shine a powerful light on its impact on our global community.
How is Frieda doing right now with her symptoms, the progression of the disease, and…
Batul’s Story Batul passed away from infantile GM1 (Type 1) on March 23, 2026. Below,…
Florence’s Story: An Update Back in 2019, we shared the story of Florence, who was…
Leonor’s Story: An Update Back in 2019, we shared the story of Leonor, who was…