Joey, Oliver & Dominic’s Story
Maria Bacon waves as she drives past two teenagers on their bikes, loaded with fishing…
-
-
Frieda’s Story – An Update
How is Frieda doing right now with her symptoms, the progression of the disease, and…
-
Leonor’s Story (Update)
Leonor’s Story: An Update Back in 2019, we shared the story of Leonor, who was…
-
Reece’s Story
Reece’s Story, By His Mother A GM1 Type 2 Story(Published April 1, 2026) “Reece, we…
-
Happy 18th Birthday, Sweet Iris
Happy 18th Birthday, Sweet Iris An update on Sweet Iris as she heads into adulthood,…
-
Kinley and Kennedy’s Story
Kinley and Kennedy’s story, by their father “The girls recently hit their 5-year post Gene…
-
Eva & Franco’s Story
Eva and Franco’s story, by their mother “We keep fighting for them and enjoying our…
-
Nella’s Story
Nella’s story, by her father “Nella is living with GM1. She’s not defined by it.”…
-
Tiffany’s Story
Tiffany’s story by her mother, Ruth “Tiffany has made me a better person. In spite…