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Home / Stories - Page 12

Stories

Browse by type: Type 1, infantile Type 2a, late infantile Type 2b, juvenile Type 3, adult

  • Stories

    Kate’s Story #AWin4Kate

    February 28, 2018August 19, 2026

    #AWin4Kate Kate was born May 17, 2011, a healthy and happy baby. We always thought…

    Read More Kate’s Story #AWin4KateContinue

  • Stories

    Joe’s Story

    February 28, 2018August 19, 2026

    A special boy that fought to the end Joe was born 4 weeks early by…

    Read More Joe’s StoryContinue

  • Stories

    Paola’s Story

    February 28, 2018August 19, 2026

    Una Bellisima Bambina Paola is a beautiful child born on June 29, 2013. She was…

    Read More Paola’s StoryContinue

  • Stories

    Aiden’s Story

    February 28, 2018August 19, 2026

    Sweet Boy Aiden Aiden is 5 years old now. Things started off great then at…

    Read More Aiden’s StoryContinue

  • Stories

    Sage’s Story

    February 28, 2018August 19, 2026

    Sage was born on November 20th, 2014, he was a 7 pound 15 ounce 20…

    Read More Sage’s StoryContinue

  • Stories

    Ashlei and Zachary’s Story

    February 28, 2018August 19, 2026

    Read More Ashlei and Zachary’s StoryContinue

  • Stories

    Evan’s Story

    December 14, 2017August 19, 2026

    Evan lives in Arizona and is the son of Brad and Marilee Diagnosis – GM1…

    Read More Evan’s StoryContinue

  • Stories

    Eli’s Story

    May 15, 2017August 19, 2026

    Eli lives in Arizona and is the son of Brad & Marilee Leishman Diagnosis –…

    Read More Eli’s StoryContinue

  • Stories

    Autumn’s Story

    April 16, 2017August 19, 2026

    In Loving Memory of Autumn – A Happy Baby through all of the trials Autumn…

    Read More Autumn’s StoryContinue

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  • Connect With Us
    • GM1 Families: Start Here
      • Resources For GM1 Families
      • Get in Touch
    • Reach Out
      • Contact Us
      • Share Your Story
      • Share a Quote
    • Resources
      • Subscribe to the Newsletter
      • Newsletter Archives
      • Blog
      • Caregiver Support Group
      • Friends Facebook Group
    • Events
      • GM1 Community Conference
      • GM1 Awareness Day
      • Rare Disease Day
      • See Our Events Calendar
    • Community
      • Community Stories
      • Family Videos
      • In Memoriam
  • Understanding GM1
    • What is GM1?
      • Life Expectancy
      • Causes & Incidence Rates
      • Download a One-Page Overview
      • Quick Facts
    • Advancements and Research
      • Latest Research
    • Subtypes of GM1
      • GM1 Type 1 – Infantile
      • GM1 Type 2
        • GM1 Type 2A – Late-infantile
        • GM1 Type 2B – Juvenile
      • GM1 Type 3 – Adult
    • Getting a Diagnosis
      • GM1 Diagnostic Testing Guide
      • Anti-GM1 Antibodies vs. GM1 Gangliosidosis
      • Newborn Screening for GM1
  • Research
    • Participate in Research
      • Join the GM1 Matrix (Patient Portal)
      • GM1 Biobank
    • Learn About GM1 Research
      • Enzyme Replacement Therapy
      • Research News
      • Cure GM1 Publications
      • GLB1 Variant Catalog (Gene Mutation Database)
    • Guides
      • GM1 Clinical Trials Guide
      • Miglustat for Families
    • For Researchers
      • Grants Overhead Policy
    • Patient Voice at the FDA
      • Patient-Focused Drug Development (PFDD) Meeting
      • Voice of the Patient Report
  • Ways to Give
    • Give
      • Donate Now
    • Fundraise for Cure GM1
      • Our Fundraising Manual
      • Do It For GM1
      • Fundraising Ideas
    • Fundraising Platforms
    • Shop
      • Shop and Support Our Cause
      • RaiseRight
      • Walmart Spark Good
    • Advocate
      • Proclaim GM1 Day
      • Buy and Wear Merch
  • About Us
    • Our Mission
    • Our Team
    • Our Advisors
    • Our Impact
    • Print A Handout
    • Financial Transparency