Ava’s Story
From Ava’s Mother (written prior to Ava passing away) Ava was 3 on December 31,…
Browse by type: Type 1, infantile Type 2a, late infantile Type 2b, juvenile Type 3, adult

From Ava’s Mother (written prior to Ava passing away) Ava was 3 on December 31,…

From Taylor, Kase, and Kolt’s Mother Three of my five children were and are affected…

From Gui’s Mother “The value of things is not in the time they last, but…

From Reece’s Father Reece Lee William Wells Reece was diagnosed in March 1994 by Dr…

From Joey’s Father Josiah (Joey) was born on March 2, 2014, a perfectly healthy baby…

From Augusto’s Father (sent prior to Augusto’s death) My son’s name is Augusto Barreiros Ribeiro,…

From Rayan’s Mother My son’s name is Rayan. He was born Tuesday, January 13, 2015…

From Maykel’s Mother Maykel Cal Oliveira was born on 12/20/2014. He was diagnosed with GM1…

From Lily’s Aunt My niece Lily Faith Tinney had a very severe and aggressive form…