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Home / Stories - Page 11

Stories

Browse by type: Type 1, infantile Type 2a, late infantile Type 2b, juvenile Type 3, adult

  • Stories

    Anisa’s Story

    January 13, 2019August 19, 2026

    From Anisa’s Mother My last child has  GM1.  I also have two girls and a…

    Read More Anisa’s StoryContinue

  • Stories

    Armand’s Story

    January 13, 2019August 19, 2026

    From Armand’s Mother My son Armand Hayes was diagnosed in 2011. We are doing all…

    Read More Armand’s StoryContinue

  • Stories

    Florence’s Story

    January 3, 2019August 19, 2026

    Florence has late infantile GM1. She was diagnosed when she was 2. She has real…

    Read More Florence’s StoryContinue

  • Stories

    Sara’s Story

    January 3, 2019August 19, 2026

    A Message from Sara’s Mother Hello Friends and Families We are an affected family from…

    Read More Sara’s StoryContinue

  • Stories

    Maria Eduarda’s Story

    January 3, 2019August 19, 2026

    Maria Eduarda was born on 07/07/2015.  She was diagnosed at one year of age with…

    Read More Maria Eduarda’s StoryContinue

  • Stories

    T-Jay’s Story

    January 3, 2019August 19, 2026

    In these images, T-Jay is nearly 18 months old.   He was diagnosed with GM1…

    Read More T-Jay’s StoryContinue

  • Stories

    Lois’ Story

    November 9, 2018August 19, 2026

    From Lois’ Mom: Lois was born in 2006. She was the first girl in the…

    Read More Lois’ StoryContinue

  • Stories

    Althea’s Story

    July 19, 2018August 19, 2026

    Althea was born on 23rd September 2016, a beautiful 6lb 8oz baby girl. Thea was…

    Read More Althea’s StoryContinue

  • Stories

    Paxton’s Story

    February 28, 2018August 19, 2026

    A beautiful baby boy born February 16, 2012 Paxton is our first and only child,…

    Read More Paxton’s StoryContinue

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  • Connect With Us
    • GM1 Families: Start Here
      • Resources For GM1 Families
      • Get in Touch
    • Reach Out
      • Contact Us
      • Share Your Story
      • Share a Quote
    • Resources
      • Subscribe to the Newsletter
      • Newsletter Archives
      • Blog
      • Caregiver Support Group
      • Friends Facebook Group
    • Events
      • GM1 Community Conference
      • GM1 Awareness Day
      • Rare Disease Day
      • See Our Events Calendar
    • Community
      • Community Stories
      • Family Videos
      • In Memoriam
  • Understanding GM1
    • What is GM1?
      • Life Expectancy
      • Causes & Incidence Rates
      • Download a One-Page Overview
      • Quick Facts
    • Advancements and Research
      • Latest Research
    • Subtypes of GM1
      • GM1 Type 1 – Infantile
      • GM1 Type 2
        • GM1 Type 2A – Late-infantile
        • GM1 Type 2B – Juvenile
      • GM1 Type 3 – Adult
    • Getting a Diagnosis
      • GM1 Diagnostic Testing Guide
      • Anti-GM1 Antibodies vs. GM1 Gangliosidosis
      • Newborn Screening for GM1
  • Research
    • Participate in Research
      • Join the GM1 Matrix (Patient Portal)
      • GM1 Biobank
    • Learn About GM1 Research
      • Enzyme Replacement Therapy
      • Research News
      • Cure GM1 Publications
      • GLB1 Variant Catalog (Gene Mutation Database)
    • Guides
      • GM1 Clinical Trials Guide
      • Miglustat for Families
    • For Researchers
      • Grants Overhead Policy
    • Patient Voice at the FDA
      • Patient-Focused Drug Development (PFDD) Meeting
      • Voice of the Patient Report
  • Ways to Give
    • Give
      • Donate Now
    • Fundraise for Cure GM1
      • Our Fundraising Manual
      • Do It For GM1
      • Fundraising Ideas
    • Fundraising Platforms
    • Shop
      • Shop and Support Our Cause
      • RaiseRight
      • Walmart Spark Good
    • Advocate
      • Proclaim GM1 Day
      • Buy and Wear Merch
  • About Us
    • Our Mission
    • Our Team
    • Our Advisors
    • Our Impact
    • Print A Handout
    • Financial Transparency