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Home / Stories - Page 6

Stories

Anna Laura’s Story

January 26, 2019November 26, 2023

From Carla, Anna Laura’s Mother: Hi, I’m Carla,  Anna Laura’s mother.  Anna Laura is also…

Read More Anna Laura’s StoryContinue

Hannah’s Story

January 22, 2019November 26, 2023

From Hannah’s Mother: We miss our little angel! We are writing our little girl’s story…

Read More Hannah’s StoryContinue

Sofia’s Story

January 20, 2019November 14, 2023

From Sofia’s Mother: My daughter Sofia, 19 months.  Unfortunately, she lost her battle against GM1…

Read More Sofia’s StoryContinue

Tayah’s Story

January 20, 2019November 26, 2023

From Tayah’s mother: This is my little Tayah and we want to give her every…

Read More Tayah’s StoryContinue

Toby’s Story

January 20, 2019November 14, 2023

From Toby’ Mother: On March 21st, 2015, a beautiful baby boy was delivered weighing a…

Read More Toby’s StoryContinue

Lily’s Story

January 14, 2019November 26, 2023

From Lily’s Aunt My niece Lily Faith Tinney had a very severe and aggressive form…

Read More Lily’s StoryContinue

Taylor, Kase, and Kolt’s Story

January 14, 2019November 26, 2023

From Taylor, Kase, and Kolt’s Mother Three of my five children were and are affected…

Read More Taylor, Kase, and Kolt’s StoryContinue

Saubhav’s Story

January 14, 2019November 26, 2023

From Saubhav’s Father My child’s name is Saubhav Singh.  He was diagnosed at age two…

Read More Saubhav’s StoryContinue

Reece’s Story

January 14, 2019November 26, 2023

From Reece’s Father Reece Lee William Wells Reece was diagnosed in March 1994 by Dr…

Read More Reece’s StoryContinue

Tiffany’s Story

January 14, 2019November 26, 2023

From Tiffany’s Mother Tiffany is my beautiful daughter, who was diagnosed when she was 10….

Read More Tiffany’s StoryContinue

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Facebook Instagram Linkedin TikTok YouTube
  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • See Our Fundraising Ideas
      • Fundraise for CureGM1
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study