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Home / Stories - Page 5

Stories

Browse by type: Type 1, infantile Type 2a, late infantile Type 2b, juvenile Type 3, adult

  • Stories

    Jessica’s Story

    February 6, 2024October 17, 2026

    How did you feel when you received a diagnosis of GM1? When I got my…

    Read More Jessica’s StoryContinue

  • Stories

    Violet’s Story

    December 7, 2023October 17, 2026

    The Law Family announces with the sweetest sorrow, the passing of their beloved daughter, Violet…

    Read More Violet’s StoryContinue

  • Stories

    Asia’s Story

    May 2, 2023October 17, 2026

    This is the story of Asia, a little princess born on December 6, 2020. Asia…

    Read More Asia’s StoryContinue

  • Stories

    Luigi’s story

    April 23, 2023October 17, 2026

    Hi friends, my name is Luigi. I’m Italian, and I’ll be 3 in October. Unfortunately…

    Read More Luigi’s storyContinue

  • Stories

    Diego’s Story

    February 28, 2023October 17, 2026

    Diego was born on June 29, 2021 in Imola, a small town in Italy. We…

    Read More Diego’s StoryContinue

  • Stories

    Strahinja’s Story

    August 5, 2022October 17, 2026

    Hello, I’m Strahinja, 19 months old from Switzerland. I have two older brothers who are fortunately…

    Read More Strahinja’s StoryContinue

  • Stories

    Theodora’s Story

    May 13, 2022October 17, 2026

    Theodora was born in October 2021. She is a very happy and smiley baby. She…

    Read More Theodora’s StoryContinue

  • Stories

    Camden’s Story

    May 3, 2022October 17, 2026

    Camden is a happy child. He loves people. Hearing certain names lights his face up….

    Read More Camden’s StoryContinue

  • Stories

    Sweet Iris’ Story

    February 11, 2022October 20, 2026

    About Sweet Iris Iris at age 5 Iris was diagnosed with Juvenile GM1 when she…

    Read More Sweet Iris’ StoryContinue

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  • Connect With Us
    • GM1 Families: Start Here
      • Resources For GM1 Families
      • Get in Touch
    • Reach Out
      • Contact Us
      • Share Your Story
      • Share a Quote
    • Resources
      • Subscribe to the Newsletter
      • Newsletter Archives
      • Blog
      • Caregiver Support Group
      • Friends Facebook Group
    • Events
      • GM1 Community Conference
      • GM1 Awareness Day
      • Rare Disease Day
      • See Our Events Calendar
    • Community
      • Community Stories
      • Family Videos
      • In Memoriam
  • Understanding GM1
    • What is GM1?
      • Life Expectancy
      • Causes & Incidence Rates
      • Download a One-Page Overview
    • Advancements and Research
      • Latest Research
    • Subtypes of GM1
      • GM1 Type 1 – Infantile
      • GM1 Type 2
        • GM1 Type 2A – Late-infantile
        • GM1 Type 2B – Juvenile
      • GM1 Type 3 – Adult
    • Getting a Diagnosis
      • GM1 Diagnostic Testing Guide
      • Anti-GM1 Antibodies vs. GM1 Gangliosidosis
      • Newborn Screening for GM1
  • Research
    • Participate in Research
      • Join the GM1 Matrix (Patient Portal)
      • GM1 Biobank
    • Learn About GM1 Research
      • Enzyme Replacement Therapy
      • Research News
      • Cure GM1 Publications
      • GLB1 Variant Catalog (Gene Mutation Database)
    • Guides
      • GM1 Clinical Trials Guide
      • Miglustat for Families
    • For Researchers
      • Grants Overhead Policy
    • Patient Voice at the FDA
      • Patient-Focused Drug Development (PFDD) Meeting
      • Voice of the Patient Report
  • Ways to Give
    • Give
      • Donate Now
    • Fundraise for Cure GM1
      • Our Fundraising Manual
      • Do It For GM1
      • Fundraising Ideas
    • Fundraising Platforms
    • Shop
      • Shop and Support Our Cause
      • RaiseRight
      • Walmart Spark Good
    • Advocate
      • Proclaim GM1 Day
      • Buy and Wear Merch
  • About Us
    • Our Mission
    • Our Team
    • Our Advisors
    • Our Impact
    • Print A Handout
    • Financial Transparency