Leonor’s Story
Hello I am Sao Piteira and we are from Portugal. I am the Leonor’s mother…
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Brayden’s Story
From Brayden’s Mom: Brayden was born on November 16, 2017 First Symptoms On Tuesday Feb…
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Joey and Oliver’s Story
Joey, diagnosed with Juvenile GM1 on April 21, 2017 Oliver, asymptomatic, but diagnosed with Juvenile…
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Hampus, Julia, and Isabella’s Story
From Hampus, Julia and Isabella’s Dad This is Hampus, Julia and Isabella. Hampus was born…
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Anna Laura’s Story
From Carla, Anna Laura’s Mother: Hi, I’m Carla, Anna Laura’s mother. Anna Laura is also…
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Hannah’s Story
From Hannah’s Mother: We miss our little angel! We are writing our little girl’s story…
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Toby’s Story
From Toby’ Mother: On March 21st, 2015, a beautiful baby boy was delivered weighing a…
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Sofia’s Story
From Sofia’s Mother: My daughter Sofia, 19 months. Unfortunately, she lost her battle against GM1…
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Tayah’s Story
From Tayah’s mother: This is my little Tayah and we want to give her every…