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Home / Stories - Page 7

Stories

Browse by type: Type 1, infantile Type 2a, late infantile Type 2b, juvenile Type 3, adult

  • Stories

    Robert’s Story

    January 1, 2020August 19, 2026

      Robert Ernest Mitchell Messer  suffered from infantile GM1 and passed away on July 30,2019

    Read More Robert’s StoryContinue

  • Stories

    Stella and Finya

    December 31, 2019August 19, 2026

      Beautiful Stella and Finya passed away within one day of one another. Finya passed…

    Read More Stella and FinyaContinue

  • Stories

    Tyson’s Story

    November 2, 2019August 19, 2026

    Our dear little Tyson was born on September 15, 1989 and lived a short 16…

    Read More Tyson’s StoryContinue

  • Stories

    James’ Story

    November 1, 2019August 19, 2026

    From James’ Mother: James was diagnosed with GM1 gangliosidosis Type 2 Juvenile on November 7,…

    Read More James’ StoryContinue

  • Stories

    Eve’s Story

    July 29, 2019August 19, 2026

      From Eve’s Mother We live in Ukraine in the Odessa region. Eve was born…

    Read More Eve’s StoryContinue

  • Stories

    Pia’s Story

    June 18, 2019August 19, 2026

    From Pia’s Mother: Hello, my name is Stefany Sanchez.  I am 23 years old.  My…

    Read More Pia’s StoryContinue

  • Stories

    Fatima and Sultan

    June 5, 2019August 19, 2026

    From Sultan and Fatima’s mother: I am Sultan Ali and Fatima Shoaib Ali’s mother.  …

    Read More Fatima and SultanContinue

  • Stories

    Eva’s Story

    May 29, 2019August 19, 2026

    Eva Maria 15.01.16-31.05.19

    Read More Eva’s StoryContinue

  • Stories

    Vitto’s Story

    March 3, 2019August 19, 2026

    Vitto’s Story from his family He was born on May 22, 2018 at 4AM in…

    Read More Vitto’s StoryContinue

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  • Connect With Us
    • GM1 Families: Start Here
      • Resources For GM1 Families
      • Get in Touch
    • Reach Out
      • Contact Us
      • Share Your Story
      • Share a Quote
    • Resources
      • Subscribe to the Newsletter
      • Newsletter Archives
      • Blog
      • Caregiver Support Group
      • Friends Facebook Group
    • Events
      • GM1 Community Conference
      • GM1 Awareness Day
      • Rare Disease Day
      • See Our Events Calendar
    • Community
      • Community Stories
      • Family Videos
      • In Memoriam
  • Understanding GM1
    • What is GM1?
      • Life Expectancy
      • Causes & Incidence Rates
      • Download a One-Page Overview
      • Quick Facts
    • Advancements and Research
      • Latest Research
    • Subtypes of GM1
      • GM1 Type 1 – Infantile
      • GM1 Type 2
        • GM1 Type 2A – Late-infantile
        • GM1 Type 2B – Juvenile
      • GM1 Type 3 – Adult
    • Getting a Diagnosis
      • GM1 Diagnostic Testing Guide
      • Anti-GM1 Antibodies vs. GM1 Gangliosidosis
      • Newborn Screening for GM1
  • Research
    • Participate in Research
      • Join the GM1 Matrix (Patient Portal)
      • GM1 Biobank
    • Learn About GM1 Research
      • Enzyme Replacement Therapy
      • Research News
      • Cure GM1 Publications
      • GLB1 Variant Catalog (Gene Mutation Database)
    • Guides
      • GM1 Clinical Trials Guide
      • Miglustat for Families
    • For Researchers
      • Grants Overhead Policy
    • Patient Voice at the FDA
      • Patient-Focused Drug Development (PFDD) Meeting
      • Voice of the Patient Report
  • Ways to Give
    • Give
      • Donate Now
    • Fundraise for Cure GM1
      • Our Fundraising Manual
      • Do It For GM1
      • Fundraising Ideas
    • Fundraising Platforms
    • Shop
      • Shop and Support Our Cause
      • RaiseRight
      • Walmart Spark Good
    • Advocate
      • Proclaim GM1 Day
      • Buy and Wear Merch
  • About Us
    • Our Mission
    • Our Team
    • Our Advisors
    • Our Impact
    • Print A Handout
    • Financial Transparency