Joey, Oliver & Dominic’s Story
Maria Bacon waves as she drives past two teenagers on their bikes, loaded with fishing…
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May 2026 Cure GM1 Catalyst
Happy May!
This is our favorite month because it means International GM1 Gangliosidosis Awareness Day 2026 is almost here!
For us, May 23 isn’t just a date on the calendar. It’s a powerful opportunity to honor the journeys of those impacted by GM1 and shine a powerful light on its impact on our global community.
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Frieda’s Story – An Update
How is Frieda doing right now with her symptoms, the progression of the disease, and…
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Batul’s Story
Batul’s Story Batul passed away from infantile GM1 (Type 1) on March 23, 2026. Below,…
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Florence’s Story (Update)
Florence’s Story: An Update Back in 2019, we shared the story of Florence, who was…
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Leonor’s Story (Update)
Leonor’s Story: An Update Back in 2019, we shared the story of Leonor, who was…
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The Hidden Weight of Rare Disease: What Research Reveals About the Caregiving Burden on GM1 and GM2 Caregivers
The Hidden Weight of Rare Disease What Research Reveals About the Caregiving Burden on GM1…
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April 2026 Cure GM1 Catalyst
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.
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Reece’s Story
Reece’s Story, By His Mother A GM1 Type 2 Story(Published April 1, 2026) “Reece, we…