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Home / Christine Waggoner - Page 3

Author: Christine Waggoner

The March 2024 Cure GM1 Catalyst

February 29, 2024March 27, 2024

2024 Cure GM1 Virtual Conference We are excited to start planning our annual conference for…

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2023 Cure GM1 Impact Report – Annual Update And Beyond

February 18, 2024January 1, 2025

Our summary of impact in 2023 is now available to read. After some time reflecting, everyone…

Read More 2023 Cure GM1 Impact Report – Annual Update And BeyondContinue

Iris’ Story from Her Brother’s Perspective

February 13, 2024February 18, 2024

As told by Iris’ brother. How has GM1 gangliosidosis affected your life? GM1 Gangliosidosis is…

Read More Iris’ Story from Her Brother’s PerspectiveContinue

Marley’s Story

February 10, 2024February 27, 2024

How did you feel when your child received a diagnosis of GM1? Early on we…

Read More Marley’s StoryContinue

Jessica’s Story

February 6, 2024February 6, 2024

How did you feel when you received a diagnosis of GM1? When I got my…

Read More Jessica’s StoryContinue

The February 2024 Cure GM1 Catalyst

February 3, 2024February 3, 2024

Rare Disease Day This Rare Disease Day – February 29th – will be a powerful…

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The January 2024 Cure GM1 Catalyst

January 6, 2024January 30, 2024

Thank You Donors We raised $76K at the end of 2023 thanks to our generous…

Read More The January 2024 Cure GM1 CatalystContinue

Violet’s Story

December 7, 2023December 7, 2023

The Law Family announces with the sweetest sorrow, the passing of their beloved daughter, Violet…

Read More Violet’s StoryContinue

The December 2023 Cure GM1 Catalyst

December 6, 2023January 30, 2024

Triple Play and Giving Tuesday Gratitude We give our sincere, heartfelt gratitude to everyone who…

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Cure GM1 to Collaborate with xCURES for Natural History Study Pilot

December 6, 2023July 1, 2024

Cure GM1, a 501(c)(3) nonprofit organization located in Albany, CA, USA is proud to announce…

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501(c)(3) EIN: #47-3154419

PO Box 6890, Albany
CA 94706, USA
1-510-306-2460

Cure GM1 does not prescribe medications or treatments.  This information is being shared for educational purposes and discussion with your doctors.

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • Fundraise for CureGM1
      • Use Our Fundraising Manual
      • Fundraise with Charity Miles App
      • See Our Fundraising Ideas
      • Used Car Donation
      • GoFundMe
      • JustGiving
      • Facebook
    • Participate in Our Events
      • Rare Disease Day
      • GM1 Gangliosidosis Awareness Day
      • Move for GM1
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study